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Old 06-15-2007, 04:21 AM   #1
Mary Jo
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Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Hi Sheila - Wondering

Hi Shelia,

I posted this message last night and this morning it is gone. Not sure where it went or what I did wrong. So, if it turns up twice that's why.

How are you dear friend? I started my day with a prayer for you yesterday and today and am surely hoping all went well and you are doing well.

Can't wait to hear from you.

Consider yourself hugged,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-15-2007, 05:17 AM   #2
Sheila
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Location: Morris, IL
Posts: 3,507
Mary Jo

I spent Wednesday with my friend as I knew I may not get over to see her for a few days. She is barely alert, just hanging on by a thread...even the hospice nurses were amazed that she is still hanging on...it is hard on me each time I leave but this time seemed harder as I knew I wouldn't be back for a few days, and didn't know if this would be the last time. Ironic that I am beginning a new battle as hers is ending. I always wake her enough to clean her teeth and lips while I'm there....she questions why, and I always say you never know who you may kiss today!" That always gets a grin out of her. Thanks so much for your care and support...I think I told you, her name is also Mary Jo...the treatment was a long day but went well I posted the details above in your other post.

THanks Again
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-15-2007, 09:14 AM   #3
kacey
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Join Date: Jun 2007
Posts: 37
friend

Sheila, Your friend Mary Jo has such a beautiful and suppoertive friend in you. I have prayed for her and hope that she has peace. This is just a feeling I have since I don't know her family, but is she waiting for permission to leave? My step father who had ALS and then a stroke, hung on until my mother assured him how much she loved him and that she would be O.K. and gave him permission to proceed to his next home. He died within the next half hour very peaceably. Not a suggestion and don't want you to take this wrong. I will pray for her and you.
Hope your new treatment went well and will be a success!

Kacey
__________________
dx 9-13-05 MRM (lt)on 9-19-05
IDC stage llb grade 2 3/24 nodes+
ER/PR- Her2+++
Groshong placed 10-13-05 and chemo started
TCH x6 and continue Herceptin for one year every 3 wks
Rads x 33 (at the end of chemo) finished 4-01-06
20 months NED
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Old 06-15-2007, 10:06 AM   #4
Mary Jo
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Location: Sheboygan, WI
Posts: 2,582
Sheila,

Remember Jesus' washing His disciple's feet as a way of showing His love and servanthood? Well, you are just like Him in the special love you show your friend, Mary Jo. One couldn't ask for a more dedicated friend. Cleaning her teeth and lips ~ what a special friend. I pray Peace, comfort and that eternal rest for her.

Glad you are doing well and pray only the best for you.

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-15-2007, 01:27 PM   #5
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Kacey
I explained just that to her family....that sometimes the dying need to be told it is OK to let go....her older sister and her daughter said they couldn't say that to her. So I did, but she is still hanging on, guess she needs to hear it from one of them.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-15-2007, 03:11 PM   #6
Carolyns
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Join Date: Jun 2006
Location: South Florida
Posts: 477
Sheila,

You are truly and amazing person. How much strength and grace you exhibit. Thank you for keeping us posted. I am sending extra prayers your way.

Love, Hope, and Peace,

Carolyn
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