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Old 06-14-2007, 02:46 PM   #1
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
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Omega 3 improves brain function, detoxifies, heart healthy, anti-cancer. I take 1000. Check out Omega 3 in SEARCH above, click and type in and hit GO. RB has contributed much on this topic. Many links to expand your view on this. Sending good vibes your way... ANDI

Leslie, Started click your links within your post. Very interesting. Thanks so much for expounding on this important topic!
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 06-15-2007, 12:33 AM   #2
Patricia
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Location: San Francisco, CA
Posts: 96
Hi Andi,

Thanks for the site info. I am going to the doc tomorrow and am going to talk to him about it. I did buy gingko last week after doing a lot of reading on that topic as well. It sounded very promising. Thanks for the advice - I desparately need the energy level that you have! :-)

Maria,
The foreign language class is interesting. I was bilingual (recent acheivement after living in costa rica for the year prior to my dx) prior to my dx and I now have a terrible time with it. It is like I lost years of progress. I told my doctor and he told me that he had a patient who was born in Guatemala and moved to CA over 20 years ago and had established her own very successful company years ago and had perfect english. After chemo she lost all of her English and had to learn it all over again. He said he believed that the chemo clearly affected the language area of the brain - which would explain the verbal 'hiccups' and gaps that we have all described.

Hugs,
Patricia
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age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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Old 06-20-2007, 06:49 PM   #3
theresaw
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Location: Maple Grove, MN
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Wink ChemoBrain!!!!!!!

My doctor will not let me take the Provigil. I guess I am okay with that. Since then I have been taking Ginkoba and Gensing so far I haven't felt as foggy I get thru the day, but I have now started going to bed alot earlier. Since I start my day at 5:15a.m. now. I pray that soon all of us will no longer have to deal with CHEMOBRAIN, my Onc just doesn't seem to want to think that it is something to be concerned about ( which makes me MAD)but what can you do.
My prayers are going out to all My Survivor Sisters
TheresaW
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Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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