HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 06-13-2007, 06:57 PM   #1
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
The taxol (much like Taxotere) was torturous for me. The brutal leg pains were horrific - like electric jolts! I only started running again about 3 months ago and had to only walk to insure proper foot placement on the ground. I was afraid if I started to run, I would break my ankle as I really didn't know where the hell my foot was until recently. I think I got major nerve damage from the stuff and my nerves have finally regenerated or something.

You are not a complainer. You are just stating a fact. I took Percocet when needed during treatment. My radiation oncologist asked me how I was doing on Taxol during my consultation and I told him. He said he had actually seen women in wheelchairs (temporarily) because of it and it is not imagined or blown out of portion. But this will pass and the tremendous amount of steroids you have to take prior to and during do not help the situation in the least. Make sure you really discuss your side effects with your onc so you get something. I didn't because I didn't get along with my first onc and didn't deal with him unless I had to. This certainly affected my health somewhat.

Hugs to you
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 06-13-2007, 07:44 PM   #2
sassy
Senior Member
 
sassy's Avatar
 
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
Images: 4
Terri,


I took Neulasta during dose dense A/C. I did not have it during weekly Taxol. I tolerated the A/C and Neulasta much better than the Taxol. I really think overall I tolerated well, and put up a great front. I do remember one night just breaking down and telling my husband I was just tired of hurting. By the end of Taxol I just HURT, everywhere. The good thing is--it does end and it does get better. Taking pain meds is an option I would recommend--after all, we are dealing with a serious disease and some pretty serious treatment! There is no sense in hurting if something can help.

Wishing you the best,
________
Zoloft injury lawyer

Last edited by sassy; 08-22-2011 at 09:17 AM..
sassy is offline   Reply With Quote
Old 06-14-2007, 06:15 AM   #3
TSund
Senior Member
 
TSund's Avatar
 
Join Date: May 2007
Location: DFW area (TX)
Posts: 431
taxane pains

Hi again.

Just processing this stuff re: pain from the Taxanes vs pain from the Neulasta.

Becky,perhaps you would lend your wisdom here. It is clear that both can cause body pain. I suspect that some of this pain (particularly those who are affected in feet, lower legs, and hands) is from the peripheal neuropathy? Or am I wrong?

Did those NOT on Neulasta/Neupogen also get the back/neck or all-over pain?

Thanks for your input.

Terri

PS re: neuropathy pain, did folk here do the icing down of hands/feet? Did it seem to help?
TSund is offline   Reply With Quote
Old 06-14-2007, 06:17 AM   #4
TSund
Senior Member
 
TSund's Avatar
 
Join Date: May 2007
Location: DFW area (TX)
Posts: 431
hmm

I think Sassy may have answered my question as she said she had the all-over with no neulasta.
TSund is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 06:41 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter