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Do not lose heart! I'm no expert in these areas - but I've read that with bone mets, scans actually can get worse initially when the treatments are working. Maybe this is also the case with the pain. Are your treatments weekly? If so, give it a little bit of time but do talk to your onc about this.
I do have experience with liver "pain". In the fine print of the Herceptin literature on all the side effects of Herceptin, one of the possible side effects is "pain at the tumor site". I had no pain from the multiple mets in my liver, but did experience a dull pain there during treatment, which I attributed to the Herceptin. I was on Taxol/Carboplatin/Herceptin and that combination slapped me into remission in 6 cycles.
Taxol and Herceptin is a very powerful and synergistic combination. You've got the big guns out on this, and I hope it will kick the pants off the cancer and you will soon be able to shoutl
MISSION REMISSION ACCOMPLISHED!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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