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Old 06-05-2007, 10:19 AM   #1
julierene
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Join Date: Dec 2005
Location: Illinois
Posts: 327
I had rib pain (no radiation), and the doc kept saying it was probably from my implants. Since being off Herceptin for about 1 month, I have had no more rib pain. He also suggested it might be from the tumors that were in my spine cutting off circulation and radiating pain through the rib area. I was so tender to touch in the ribs, that I started jumping every time a kid would come to hug me. But the rib pain is gone now, so I think it might have been a combination for me.
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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Old 06-05-2007, 10:31 AM   #2
Beckie
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Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
I had rib pain on both sides but mostly on the right side. It would come and go but sometimes I would have to stop and hold my breath until it went away. Of course, I was afraid it was the cancer, but nothing showed on the scans. I am pretty sure mine was the Herceptin. Come to think of it , it has been several weeks since I have noticed any rib pain. I agree that if any pain continues, get it checked out. My shoulder pain was mets advancing. I hope yours is side effects. God bless.

Beckie


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Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today


I know Who holds the future, and I know He holds my hand.
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