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Old 05-03-2007, 07:10 PM   #4
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Yes GWblahblah is Lapatinib indeed, I wish they could stick to one name only, I cannot quite see the point of having two names for each product and a reference number..but that is another debate..

Back to vaccine, Beverly what was the argument against her2 vaccine from your consultant? and why was he concerned about the UofW ones in particular?

Yes once you enroll in one then it is hard to apply for another..U of W tries to allow you on new one they make (as combined treatment), which is good.

I know that it was a tough decision for me to chose for the above reasons, but since all vaccination prog I have heard of are at phase 1 and 2 research trial, I suppose you cannot make an informed decision, prelim data at U of W were good. E75 is also meant to be good to but you cannot stay on maintenance herceptine whilst on trial.

So basically results from trials will not be ready for years, and the next phase (phase 3) for these will not be available for at least 5 years; so sometimes you just have to jump and decide to go for it! (which as suppose is inherent to the nature of 'trials'..)

Cheers all,
Kx
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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