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Old 04-30-2007, 01:44 PM   #1
MichelleMoon
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Join Date: Oct 2006
Location: Chicago
Posts: 36
No big Herceptin run for me either
I've been taking Herceptin since June '06. First with Taxol and now with Xeloda/Tykerb. I had about 4 months on Herceptin alone before my lung tumor woke up again. I hoped to get so much more. My FISH test was 2.7, barely HER2+. I wonder if this has anything to do with my results. Who knows. No one has figured out who will do well. Maybe Tykerb will provide a longer break for us.

All the best,
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Stage 2 '99, triple negative, 5 nodes involved
mastectomy, AC + T, rads, '01 TRAM flap
Stage 4 '06, lung mets, ER/PR-, HER2++
07/06 - 11/06: Taxol + Herceptin to 'strong partial remission'
11/06: Herceptin every 3 weeks indefinitely
01/07: brain mets, finished WBR, NED in head!
04/07: Xeloda and Tykerb for lung met progression
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Old 04-30-2007, 04:19 PM   #2
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
so sorry Andi
Yes that was a really crappy birthday present, even a toaster would have been better. I'm frustrated for you and hoping that the next approach zaps that junk. Know that you are loved and prayed for.
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with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 05-01-2007, 08:30 PM   #3
Andi
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Join Date: Mar 2006
Location: IOWA
Posts: 243
Michelle and Julierene lets hope the tykerb will do for us what the herceptin wasn't able to. Joy - thanks for your kind words and thoughts, I always appreciate your comments.
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Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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