| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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04-28-2007, 09:52 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Lani:
I think that the Tykerb is only available through mail order pharmacies, that the Tykerb Cares program is contracted with.
Once your onc submits your paperwork, the Tykerb Cares program forwards your prescription to one of the participating pharmacies to fill the order for you.
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04-29-2007, 08:01 AM
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#2
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Yes, and the Tykerb Cares people contact your insurance to determine which of the participating pharmacies is a provider for your insurance in order to get the best coverage for each individual.
The list of participating pharmacies is on the TykerbCares website.
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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05-11-2007, 06:57 PM
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#3
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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I am on Tykerb and Herceptin. I am going to check with my oncologist about whether we are going to add a chemo. Am I the only one on just the two?
Carolyn
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05-14-2007, 03:03 PM
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#4
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Senior Member
Join Date: Mar 2006
Posts: 4,780
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Carolyn
can you tell us if you have experienced any side effects on the combination of Tykerb and herceptin ?
Thanks!
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05-14-2007, 06:51 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Hi Lani,
Sure, I can tell you that I have not had much in the way of side effects so far.
I took my fifth dose this morning. I go to the bathroom twice in the morning before 9:00 AM and that is it. I have wondered if I may be experiencing reduced side effects because I am on Cipro for a UTI. I don't know if that would matter or not.
I could say that I might feel a bit more tired but that could be the anxiety of switching treatments and the recent news of progression.
Love, Hope, and Peace,
Carolyn
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05-15-2007, 09:40 AM
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#6
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Senior Member
Join Date: Mar 2006
Posts: 4,780
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Carolys
Thanks for the input.
I guess there is a clinical trial accruing with herceptin and tykerb only for early bc, but haven't heard of anyone on it--so you are the pioneer.
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05-15-2007, 09:46 AM
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#7
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Senior Member
Join Date: Mar 2006
Posts: 4,780
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Carolys
Thanks for the input.
I guess there is a clinical trial accruing with herceptin and tykerb only for early bc, but haven't heard of anyone on it--so you are the pioneer.
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05-17-2007, 12:16 PM
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#8
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Senior Member
Join Date: Jul 2006
Location: Coconut Grove, Florida
Posts: 25
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Hi Carolyns,
I am restarting tykerb tomorrow and restarting herceptin (after 8 1/2 years on it with various chemos) next Wednesday. I'm glad to hear that your side effects aren't too bad so far. I was on tykerb last month for 10 days and once the onc gave me my 5th dose of taxotere, I was a total mess. So I stopped everything for 3 weeks and now we're starting up again now that I have recovered. But NO TAXOTERE. I'm done with that. I'm nervous about the diarrhea starting again but I am determined to make this work! Wish me luck! I'll keep you all posted on my progress.
__________________
Debbie
8/96 - Diagnosed Stage I - 1.8 cm tumor in left breast
0+ lymph nodes, ER+/PR-
Lumpectomy, radiation, CMF x 9, Tamoxifen
6/99 - Stage IV - 1.2 cm tumor in left lung, HER2 NEU +
VATS thoracotomy, Herceptin and Arimidex
2000 - Bone mets to left scapula and right ribs
Herceptin; Taxol x 9, Zometa
2/2001- Rt. lung - 6 mm tumor
Mini-thoracotomy
2/2001 - 12/2006
Xeloda-10 months, Navelbine-10 months,
Gemzar, Abraxane, Taxol/Carboplatin x 10, Aromasin, Faslodex,
Zoladex, Tamoxifen
2001 - Radiation to left scapula for pain managenent
9/2004 CyberKnife to right rib
7/2006 - Pleural effusion - thoracentesis performed twice
1/2007 - Pleuradesis and Taxotere x 5
4/2007 - Stopped Herceptin after 8 years (weekly).
Started Tykerb with Taxotere but stopped after 10 days
5/2007 - Stopped Taxotere, restarted Tykerb and Herceptin
Currently on Tykerb, Herceptin, Zometa
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05-17-2007, 12:26 PM
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#9
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Muldoonmom,
I wish you luck and have my fingers and toes crossed that you have very mild side effects. I am on day 8 and still have the same "system" as before and the same side effects. I wake up an hour early take my Tykerb and then go back to sleep. Wake up make a potty trip, eat breakfast, another potty trip and then off to work I go....I know too much information.
So far so good. I wish you luck!
Love, Hope, and Peace,
Carolyn
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