herceptin AND tykerb/xeloda - who pays?

[bailey]

If anyone has info. on the tykerb/xeloda mix plse. forward as I will be starting in the next couple of weeks.
Interested in what you took for nausea, how you dealt with the hand and foot redness, any hair loss anyone? Any info. would be great. Energy levels, food/diet , etc.

thanks
Bailey

[Zoid]

Hi Bailey,


I've been on Tykerb and Xeloda for 3 mo now. I occassionally get nauseous, but my doctor have me some anti-nausea tablets that kind of work. I haven't found any correlation between where I am in the cycle and the bouts of nausea.

Two things have helped my nausea when I do get it; 1) chocolate or chocolate ice cream, and 2) Ginger anything; ginger ale, ginger cookies, candied ginger, etc. My favorite are "Ginger Chews" - they are actually really spicy so I didn't think they'd help, but I eat them about 1/4 of the chew at a time and it really helps.

I had some problems with fatigue and wouldn't be as active as normal. I finally decided to do my best to ignore the fatigue and that's working pretty well. (Either that or my body got used to the combo).

The bottoms of my feet are reddish and I get blisters sometimes, but keeping them well-moisturized makes a huge difference. My Dr. recommended "Utterly Smooth, which Trader Joe's has at a ridiculously low price). Slather it on and then put on socks. I also found that getting softer insoles for my shoes helped.

I've never heard of anyone losing hair b/c of Xeloda/Tykerb
Hope this helps,
Susie

[hutchibk]

I am just ramping up to start Ty/X tomorrow. I will start Xeloda first and then when the Tykerb arrives (in about 10 days), I will add it immediately. My doc said that Zofran is what he will prescribe for the nausea, if there is any... isn't Zofran supposed to be pretty pricey?