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Hi Sandy; Some people at my treatment center have had their ports in their arm just above the crook of the elbow...I've been told you have to be careful lifting. I've also heard they can be placed in the neck, but never talked to anyone with that situation.
I'm thinking of having mine moved also, but I have lymphedema in both arms now so it will have to be the other side of my chest or my neck. I want to have a "Power Port", which is designed to be able to take ALL contrast injections in addition to chemos. I don't want anymore sticks in my arm because of the lymphedema. The CT contrast injection last week really played hob with the lymphedema.
Are you having discomfort or problems with your port?
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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