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Old 04-11-2007, 08:20 PM   #1
Lolly
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Esther, a friend from my center is getting started on the process, and I'm probably starting the paperwork next week, will post how it goes but gosh, it seems pretty strange that we have to go through all this if we have insurance, our oncs have prescribed an approved drug, and we NEED it. Doesn't seem like Genentech made it so difficult when Herceptin was finally approved.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 04-11-2007, 10:36 PM   #2
Esther
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Carolyn, after my dosage I do not feel any side effects that I can tell, but perhaps the effects are cumulative.

Michelle I am stage 4, I am in my 4th year now.
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Old 04-12-2007, 02:37 AM   #3
supermehra
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3 weeks process

I got my 30 day supply delivered yesterday after 3 weeks of co-ordinating with a doctor and a pharmacy... I paid for my supply.

Fairly hassle free... starting soon... need to undertake excision of a tumour first.
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