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04-02-2007, 10:49 AM
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#1
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Oh my. Life sure does happen. I don't even think your oncologist could predict whether or not you are in danger or whether you might recur while you're pregnant. It sounds like you got some aggressive treatment -- chemo and radiation. And a few Herceptin treatments are better than none. Hopefully the treatment mopped up any stray cells. But I agree that you should re-start herceptin ASAP after baby is born. No breastfeeding with this one. LOL. We all will keep our fingers crossed here for you. Healthy baby, healthy mom. Congratulations.
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MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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04-02-2007, 11:08 AM
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#2
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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One good thing in your favor is you are ER negative so your cancer is not estrogen fed which by being pregnant would put you in more danger as estrogen is higher during pregnancy. Try to relax, take good care of yourself, eat well, get plenty of rest which may be hard to do with other children to take care of. You should do fine and this will be a very special baby! Easy for me to say this I am not in your shoes. No one can predict whether you will reocurr and hopefully, not in the 9 months you are pregnant. I am sure you will hear from others here as you are not the first one this has happened to. Sending you a big hug, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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04-02-2007, 01:46 PM
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#3
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Member
Join Date: Mar 2006
Posts: 22
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Georgie,
I can't even imagine the stuggle it must be to be trying to find the right thing to do for both you and the baby. I would definitely think being er- would be in your favor.
As for the herceptin, are you sure it is off limits?
I am pretty sure I remember reading about Stefanie Spielman(nfl players wife) getting herceptin while she was pg a couple of years ago. However, she is stage 4, so your circumstances are different. I am pretty sure she was treated at the James Free Cancer Center in Columbus Ohio.
Also I see Dr Theriault at MD Anderson mentioned a lot in re to cancer and pg.
I am not sure who you see or where you live, but I am the queen of consults, so I would definitely pursue other opinions for more info on your cirucumstances.
Good Luck to you,
Kim
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04-02-2007, 07:49 PM
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#4
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Senior Member
Join Date: Nov 2005
Posts: 943
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Hi there,
I'm so sorry to hear that you're going through bc while pregnant. I think you should also post your question on the YSC Young survival coalition board website. Praying for you.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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04-03-2007, 06:51 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Georgie-
I'm sorry I don't have any helpful advice, but I did want to let you know we are thinking of you - what a wonderful joyful happening to look forward to...
Regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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04-03-2007, 10:44 AM
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#6
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Senior Member
Join Date: Nov 2005
Posts: 943
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Georgie,
I just wanted to add, make sure you go to a major cancer center, something like MD Anderson, Sloan Kettering, or Dana Farber Cancer center, for all of your cancer care as they are most likely to be on top on things.Best of luck to you.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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04-03-2007, 10:52 AM
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#7
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Georgie - I just wanted to pass on to you -- last summer when I met with my oncologist, he was telling me he just had a follow up visit with a patient of his - she was pregnant and found that she had b/c. She delivered her baby and that baby is now 17 years old - both mother and baby are doing well! Think positive thoughts that this will be your story, too. This baby is going to be an extra special gift.
__________________
Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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04-03-2007, 10:44 AM
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#8
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Senior Member
Join Date: Nov 2005
Posts: 943
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Georgie,
I just wanted to add, make sure you go to a major cancer center, something like MD Anderson, Memorail Sloan Kettering, or Dana Farber Cancer center, for all of your cancer care as they are most likely to be on top on things.Best of luck to you.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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