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Old 03-26-2007, 03:53 PM   #1
LittleLegos
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Join Date: Feb 2007
Posts: 15
Hey Ladies,

Thanks for all your replies! I wasn't getting email updates, so I just checked. It will be interesting to see how the hair thing works out. I wish I could just know...but I guess I will soon enough. It does look like a good amount of hair loss is a guarentee. My family thinks a wig is a good idea and the one I have picked out looks pretty good. I worked with a local stylist who specializes in wigs. She had a bunch I could touch and look at. I chose a human hair wig that feels like my hair. The color match is pretty good too, I'm a red hed and it's really close. Another thing is both my kids LOVE to touch and play with my hair. I even have thoughts of cutting my hair in pony tails to salvage as much as possible for the kids... I will wait a little to see how the loss goes though.

I just had my second infusion today and feel pretty good. Last week was good. I just had some tired days, a bit of intestional discomfort, and minor hip pain. I was able to do my regular schedule except for the day after treatment. I layed around most of that day.

Thanks again and I'll visit you all more frequently now!
__________________
Little Legos, 34 yrs old
dd 3yrs, ds 6.5yrs

12/29/06 DCIS dx grade 2-3 with necrosis and focal early microinvasion
2/7/07 Partial Mastectomy and Sentinel Node Biopsy
2/18/07 dx .6cm IDC with DCIS 1.4cm, grade 2 ER-PR-HER2+++
neg nodes (3 taken), clean margins
3/20/07 Start 12 weekly Taxol - Herceptin, more Herceptin to follow
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Old 03-26-2007, 08:26 PM   #2
DonnaD
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Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
LittleLegos,
First good luck to you. Doesn't it feel good to have the second infusion done. I first had A/C every three weeks x 4. Hair started coming out 14 days later. I used hats and had really thin bangs combed from the back to the front. I will never make fun of another man with a comb over again. My blood levels dropped and I needed nuelasta. Not sure if it was A/C, Nuelasta or the combination but the hair on my head all disappeared . I started Taxol and Herceptin every 3 weeks x 4 in Jan. I lost most of my eyebrows, eyelashes and all other hair on my body, but not on my head. I have thin peach fuzz which is growing very slowly and it is white.

I did get into intestinal issues on my third round of Taxol and Herceptin. If you get into similar problems don't try and brave it out. Talk to your onc or primary.

The wig you picked out sounds very nice. I got one close to my hair color and did it short. Then when my hair is back I can ditch the wig ASAP. My husbands insurance did cover the wig (we had met our deductable).
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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