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Old 03-24-2007, 04:33 PM   #1
Mary Anne in TX
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Location: San Antonio, TX
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I'm really lovin' the palm tree, Sheila!!! I've decided not to make any decision for about 3 - 6 months. the thought of the expander makes me tired. But maybe by late summer I'll be ready! I appreciate all the sharing on this topic. Sometimes I really wish I'd pressed harder to have had both sides done and just forget it! But I know how time changes thinking. Thanks to all for sharing their experiences and knowledge. And most of all for keeping it fun! I may keep looking odd for quite a bit longer!!!!! Maybe a puppy????? Good cheer, mary anne
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 03-24-2007, 06:43 PM   #2
Sheila
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Location: Morris, IL
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Wink

Just a reminder, if you go with silicone, or maybe even saline, I do know that it is harder to get an accurate echo done as I had quite a time with them being able to visualize the ventricle because of the implant.....(not the palm tree! ) They just injected an inhancer into my vein and got a clear picture and measurements...just something to remember if you are having an echo done versus a muga scan.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 03-24-2007, 06:54 PM   #3
Marlys
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Sheila,
Put a pair of flip-flops under the tree!
Love, Marlys
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Old 03-24-2007, 07:07 PM   #4
Becky
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Make it green flip flops!!
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 03-24-2007, 07:21 PM   #5
Liz J.
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Smile Don't give Sandy any ideas

Becky,

Sandy has the patent on the green footwear (lol).
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Old 03-26-2007, 06:00 AM   #6
jessica
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Hi~
I just had my expander "swap out" 3 weeks ago after a L skin sparing mastectomy. In the process, my R side was augmented (slightly-just 250cc's) to match the L.
My implants are silicone & I am AMAZED by how real they feel. As they were expanding my L side w/saline, I was a little uncomfortable with how not real the saline felt. Sometimes I could even feel the saline swishing around inside!
After I was finished w/the expansion period & scheduling my swap out surgery, I had some sadness about altering my R, healthy breast. But the silicone implant feels totally real-kinda reminds me of my how my breasts felt when I was younger & they were much fuller.
The L side (mastec/expander side) still feels a little rigid-the skin even has a little shine to it, so I'm really glad to hear from Kelly that things continue to "loosen up".
And just a note about silicone implants - there has NEVER been sufficient evidence to substantiate all the claims of complications w/silicone implants. The FDA ban was effective in the US only (maybe Canada too?) b/c we live in such a litigious society & the FDA was being very cautious. In the meantime, silicone implants have always been available to all women, for all reasons outside of the US.
My doc had me meet w/his nurse to talk about all the details of my surgery, address any/all concerns about implants-silicone & saline-before my surgery.
I hope you have the same opportunity, so that when you do go in for your next stage of reconstruction, you can go in with knowledge, confidence about your decision & peace of mind!
Keep us posted~
Keep the Faith!
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