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Old 03-20-2007, 11:39 AM   #1
Hopeful
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Soft Nails

Let me apologize in advance for this petty complaint. I have been on Herceptin for 6 months, and Arimidex for 5, and have been experiencing something I have never had to deal with before - soft fingernails. I am so used to naturally strong, long nails, this is driving me crazy. I keep them trimmed short, but they are continually getting rips in the sides that start below the cuticle line. It becomes very difficult to work around getting the rip caught on things until it grows out enough to cut off. Does anyone have any suggestions for things that have worked for them to keep their nails from ripping? When I was a kid, I remember ads for some yucky tasting substance that was touted as promoting stronger nails. Has anyone used such a product? Should I apply a few coats of clear nail polish? Anything else? I do take Vitamin D and calcium supplements.

Hopeful
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Old 03-20-2007, 12:32 PM   #2
Margerie
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Hopeful,

I am right there with you! I used to have the strongest nails. I have tried strengthening polishes- nothing really works. I just give up! Am on Arimidex and herceptin also. Maybe the combination? I was on taxol and herceptin for 12 weeks and my nails were fine. I hope someone has some suggestions. It is really a pain not using your nails as tools. I took them for granted.
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Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
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Old 03-20-2007, 04:39 PM   #3
tricia keegan
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Me too!

Although I finished herceptin last November but am taking Arimidex now.
I have the same problem having kept really strong manicured nails right through chemo etc.
Sorry I can't help much but before I began chemo someone gave me some Christian Dior base coat for nails which I used right through treatments so I've just bought some more in case it was that which kept them intact despite the drugs!
Not sure if it'll work but I'll let you know if it does.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 03-20-2007, 05:35 PM   #4
Andi
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I have had the same problem. It started when I was doing the Taxol and Herceptin. I finished my herceptin in September but had to start again in January due to a recurrence. My nails never improved during that time (I realize it takes time for nails to grow out). Now that I am back on the herceptin, I figure it is just something I will have to live with. I do use rubber gloves when putting my hands in water for cleaning or doing dishes and that has helped the splitting somewhat.
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-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 03-20-2007, 05:42 PM   #5
tousled1
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I have the same problem since Herceptin. I have found that Sally Hansen Natural Nail Growth Activator helps tremendously.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 03-20-2007, 06:55 PM   #6
Jackie
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Exclamation Been There

Hopeful,

I too had a lot of difficulty with my nails & I had had strong nails, before I started Taxotere & Herceptin. I lost all of my nails towards the end and shortly after finishing the Taxotere. In fact some of my nails came off twice. My chemo nurse told me to use Sally Hansen's Hard as Nails to help as I had nails. I also took Hair, Nail, & Skin vitamins (got those at WalMart). I am 16 months out from chemo and finished Herceptin in Aug. '06. My nails have slowly grown out and strengthend. I have seen more improvement since I have been off Herceptin. I do protect my hands with gloves when washing dishes and cleaning. It has been a very slow process that I get very impatient with. I still have two nails that are reg. length, but are not fully attached as they should be. I have to keep them short to keep from catching them on something. Just keep them moisturized with a good lotion and be patient. I know that is easier said than done.
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Stage II, Grade 2, DX 4-05
EP +, HER2 +++,
1 node+, 1.6cm
46 yrs. old at time of dx.
Completed Chemo 11-05
Completed 1 yr. Herceptin 8-06
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Old 03-20-2007, 07:24 PM   #7
Hopeful
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Kate and Jackie,

Thanks for the suggestions for the Sally Hansen products. I will pick some up this week and give them a try. I have always worn gloves to do dishes and other housework, and try to be extra careful, but it doesn't seem to be helping here. I appreciate the recommendations.

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Old 03-20-2007, 09:27 PM   #8
chrisy
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I too had a problem with really crummy nails. They would split and were, as you say, just very weak. I tried everything - Sally Hansen's, hoof cream, you name it. None of these seemed to really make much of a difference for me.

Somebody suggested magnesium supplements, which I started taking and my nails got much better. I have NO CLUE if that's what did it - maybe it was something else entirely, like a change in seasons. But right now my nails are strong, although they do have what I call the "chemo ridges" , I assume from the Herceptin. This is horizontal ridges at regular intervals which I imagine are coniciding with my 3 weekly treatments.

None of this is scientific at all - so Becky, Sheila, and whoever, feel free to rebut any or all of this! LOL.

Anyway, thats my experience!
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 03-21-2007, 06:02 AM   #9
ExpectAMiracle
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I am a newbie to the board, but I have a question about nails too. I have been getting my nails "done" about once a month for the last several years. I get the artificial tips with acrylic put on. Is there any problem with doing this while on chemo (which I will start next month). If not, this may be a good solution for folks with nail problems.

Thanks!
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Susan in VA

Determined to be a VICTOR not VICTIM - by the grace of God!
DX 2/8/07 at 48
1.75 cm IDC in left breast, Stage 1
Grade 3, ER-/PR-/HER 3+
Lumpectomy 3/7/07, 5/5 nodes clear, clear margins
Starting TCH on 4/9/07, every 3 weeks X 4 treatments - Completed on 6/12/2007
33 rads to began 7/2/07 and completed on 8/22/07
Herceptin every 3 weeks until April '08
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Old 03-21-2007, 06:29 AM   #10
MJo
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My friend and fellow BC survivor loves her acrylic nails, but the oncologist told her not to use acrylic nails during treatment. Talk to your onc.

My nails are still soft -- finished chemo in May, rads in August and Herceptin in December. I hate my soft nails. But at least they are pink now. They turned black when I was on adriamycin/cytoxan, that devil drug. A woman in my Wellness Community Support Group dragged herself in last night because she wanted comfort. She's on her 3rd A/C and feels horrible. My memories of A/C treatment have faded, but it's not bad to be reminded occasionally that I fought my way through some difficult treatment.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 03-21-2007, 07:56 AM   #11
Karen Weixel
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My nails are terrible and I am 8 months out from completion of Herceptin. Maybe I'll try the magnesium.

Karen
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Old 03-21-2007, 01:09 PM   #12
Marcel
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soft nails

I'm recommending Sally Hansen, too -- a product called "Miracle Cure for severe problem nails". Don't know if you can be a hand model anytime soon, but it delivered a noticeable improvement in a short time.
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Old 03-21-2007, 02:30 PM   #13
ExpectAMiracle
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Oh no! I'm going to lose my hair AND my acrylic nails? Is nothing sacred to chemo ?

That is really a bummer though. Thanks for forewarning me.

Guess I'll be looking at the Sally Hansen stuff too. My "real" nails are soft without chemo.
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Susan in VA

Determined to be a VICTOR not VICTIM - by the grace of God!
DX 2/8/07 at 48
1.75 cm IDC in left breast, Stage 1
Grade 3, ER-/PR-/HER 3+
Lumpectomy 3/7/07, 5/5 nodes clear, clear margins
Starting TCH on 4/9/07, every 3 weeks X 4 treatments - Completed on 6/12/2007
33 rads to began 7/2/07 and completed on 8/22/07
Herceptin every 3 weeks until April '08
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Old 03-21-2007, 03:52 PM   #14
rinaina
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A great product for strengthening nails I found is sold on one of the home shopping networds and the name is something like T.I.P.P.S. It might be one T, not sure but it works if you use it regularly. I too never had a problem with my nails and now I do with both finger and toe nails. No nothing is sacred when it comes to chemo. However, if it saves your life it is all worth it.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-22-2007, 04:32 AM   #15
ExpectAMiracle
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Of course, you are right, if chemo saves your life, then nails and hair are a small price to pay. It's just that I am just starting this journey and it seems that every day you find out something else that makes the struggle more painful. But to have NED is the goal so if the nails must go, they must go.

Thanks!
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Susan in VA

Determined to be a VICTOR not VICTIM - by the grace of God!
DX 2/8/07 at 48
1.75 cm IDC in left breast, Stage 1
Grade 3, ER-/PR-/HER 3+
Lumpectomy 3/7/07, 5/5 nodes clear, clear margins
Starting TCH on 4/9/07, every 3 weeks X 4 treatments - Completed on 6/12/2007
33 rads to began 7/2/07 and completed on 8/22/07
Herceptin every 3 weeks until April '08
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Old 03-22-2007, 09:12 AM   #16
rinaina
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Hi Expectamiracle, I don't mean to minimize the struggles and frustrations with this breast cancer treatment process. I still find the hair thing very upsetting. I know I should be grateful that I made it through chemo and I am well into my herceptin treatments (6 months worth now), but come on, losing all your hair, then dealing with it growing back not to your liking, still not having a full set of eyebrows or lashes and now the foot and hand thing with the nails and splitting of the skin....it is a lot to deal with. The only thing that keeps me from getting too down is to keep telling myself that if these drugs can do all of that, they must be killing the cancer and stopping it from coming back. But I hear ya, it sure hasn't been a picnic to say the least. Hang in there and if you need a shoulder, mine are pretty broad!
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-22-2007, 03:59 PM   #17
ExpectAMiracle
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Hi rinaina!

Thanks for the wonderful reply. There are so many elements of this process that I am just starting to learn about and understand. It is great to have so much experience on this board to help me over the rough spots.

How long does it take eyebrows and lashes to come back once you finish chemo? How long for hair to come back? Does taking Herceptin delay the return of hair? I am having a hard time with thinking about the hair loss too. I bought my first wig today in anticipation of being bald. It wasn't easy.

Thanks!
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Susan in VA

Determined to be a VICTOR not VICTIM - by the grace of God!
DX 2/8/07 at 48
1.75 cm IDC in left breast, Stage 1
Grade 3, ER-/PR-/HER 3+
Lumpectomy 3/7/07, 5/5 nodes clear, clear margins
Starting TCH on 4/9/07, every 3 weeks X 4 treatments - Completed on 6/12/2007
33 rads to began 7/2/07 and completed on 8/22/07
Herceptin every 3 weeks until April '08
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Old 03-22-2007, 04:12 PM   #18
rinaina
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My eyelashes and eyebrows came in very slowly and not as full as they use to be plus my eyelashes seem very fragile and fall out easily. My eyebrows, what there is of them, are sparse and I have had to master the art of drawing them on using a combination of powder and pencil. Everyone tells me they are very natural looking, but man, is it a pain in the you know what to have to do that. Adds to much time to my morning routine as I am somewhat of a perfectionist so it takes me a while to get it right. As for when did it start to grow back. Let's see, my hair started to grow in like peach fuzz about 2 months after treatment and kept growing at a decent pace but to date it is about 2 inches long. I finished chemo the last Thursday in July, 2006. My eyelashes came in very very slowly as did the brows but as I stated, they didn't come in all that great.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-22-2007, 08:01 PM   #19
tousled1
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About 4 months after my last chemo treatment I had enough hair on my head that you could actually see I had hair - that was September of last year. I've had 3 haircuts since then -- actually trims. When my hair began to grow back it was growing in at different rates all over my head. I've been having it trimmed every 8 weeks just to try and keep the hair even and also to try and get it into a style. Also when it first came back it was extremely gray and as it grew the gray disappeared! It's darker than my original hair and very straight. My eyebrows and lashes were slower to grow. I now have eyebrows but the lashes are still rather thin. One good thing, the hair on my legs is growing extremely slow. I've only had to shave my legs once! Also, the hair under my arms has not grown back, so I no longer need to shave under my arms.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 03-24-2007, 03:24 PM   #20
MCS
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Smile

yeah. i know ifelt petty when i cmplian to myself about the nails. but we all deserve a little vanity, right?

anyway, i've been off herceptin for 3 months and my nails wont grow. tried all different color bottles from Sally Hansen, you know how they do things, nothing worked. I followed other ladies' advice here

........so i fixed myself psychologically. i am still here because of this medicine regardless of how my nails look like. just pint them a pretty peach or pink color and i've seen some short red nails that are gorgeous

AND look at all the movie star hands advertising watches, they all have choppy nails!!! look at Uma Thurman ads and Kate Moss.... short short nails. so now i'm ok with it

lots of love

XOXO

MCS ( maria)
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