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Old 03-20-2007, 09:12 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Becky, Thanks for all the great information. Your always so great at explaining things. It sounds like I got most of the information correct other then the fact that NOT all hyperplasia turns into DCIS. Maybe my surgeon said it *can* turn into DCIS and then IDC over time. (Verses that it *does* over time.) I just know I feel a sense of relief that this is over & done with.

My surgeon assured me there was no signs of DCIS...only the hyperplasia...so that was very good news. The only thing left to cause this pain in the axilla *has* to be the port? I've had the port in for 13 months now and I know it sure looks bad on my arm where the cathether tubing runs under the skin. Its all red and has scar tissure built up on it. I do believe I am at the END of my herceptin. But to be honest I've kept my mouth shut since my onc pays NO attention to me or whats going on. If they gave me a few extra herceptin by accident, I sure wasn't going to say a word about it. I missed three wks of herceptin when I landed in the hospital...so this month probably is the LAST of herceptin. I know my nurse just asked me this last time? (I think they are ON to me.) LOL I'm busted. So if they figure it out for sure...I WILL have my port pulled to see if the port is the problem? Process of elimination. My axilla feels like I *scraped* the *inside* of it really hard on a brick wall. It really hurts. I'll give it a couple weeks to settle down and then see about getting it pulled.

One last thing...I am SMILING after getting this last path report...and even more so after hearing from you...and Lani's great information she took the time to post. Its much apperciated.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 03-20-2007, 11:49 PM   #2
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Lani, Your post was very enlightening. Yes I am perimenopausal. Four days after my surgery I was spotting. My body was trying to start my cycle for the *first* time in a year. So that no doubt would explain the high degree of florid my surgeon mentioned. (He said it was really HIGH.) But thanks to you...I now know why. Thanks so much for your time and trouble to post those for me. I am just thrilled now for a change. I've had enough stress this year...its about time I get some good news.
------------------------------------------------------------------------------------

Thanks to each and everyone one of you for your replies. I get so much more here then I could even think about getting down at my cancer center. You guys are all awesome.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
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