HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 03-20-2007, 05:57 PM   #1
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
I've had problems with my hemoglobin dropping since day number one of chemo. It has dropped as low as 8.1. I've been getting procrit shots just about every three weeks since December 05. I started Herceptin only in June 06 and thought that this problem would go away -- wrong! My hemoglobin still drops and I'm still getting Procrit shots. I go this Thursday for my Herceptin and I already know that my counts are low. I can tell by the way I feel - very fatigued. Now with all the bad press that Procrit has gotten I'm not sure what to do. I've been eating more protein, taking a multivitamin, multiB vitamin, B12 and eating a lot of fresh fruit and veggies. My body just seems to be extremely slow in getting back to normal. I can tell you I'm tired of feeling fatigued all the time and sure wish there was a magic wand I could wave and have my blood counts come up to normal and stay there.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 03-20-2007, 09:06 PM   #2
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
If you'd rather not do liver and onions, Feosol or Vitron C are OTC options. If you're feeling well, I think you're within normal levels, I'd skip the supplements. For me, I irrationally worry that too much iron may make it too comfortable for future cancer cells. BB
Bev is offline   Reply With Quote
Old 03-21-2007, 10:12 AM   #3
Grace
Guest
 
Posts: n/a
Thanks all,

I think we should dub this the "Answer Board." So much faster than doing internet research or even asking my doctors/nurses.

Bev and Becky--I didn't know anything over 11 was okay for giving blood, so that makes me feel better already. I suppose because I was 14+ when I started I wanted to be 14+ when I finish. Now I'll relax, at least about this one.

Rhonda--I knew about the liver, but my mother, a wonderful lady, was the worse cook in the world. She had great ideas about nutrition just didn't know how to execute them, so I learned to hate all the good foods in life: she made us eat liver every Thursday night, but it really was like the proverbial shoe leather. I won't mention what she did to spinach!

Kate--Sorry you're so tired. That happened to me yesterday after my herceptin infusion. I could barely get from Third Avenue to my apartment as the walk is on an incline. And then last night I was really sick. I wonder if herceptin accumulates in our blood to the point it becomes very difficult to tolerate.

Lolly--I will try the molasses, perhaps in orange juice.

Thanks again all of you. Much appreciated.
  Reply With Quote
Old 03-21-2007, 01:19 PM   #4
Sandy H
Senior Member
 
Sandy H's Avatar
 
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
I have a friend who has ovarian cancer and is having a terrible time with her hemoglobin. She was telling me her sister who is a nurse did some research and has her cook marrow bones(can get them in the meat section) let the broth cool and skim off the fat. She then makes a soup by adding vergies she likes with some brown rice. She says this brings her hemoglobin right up and she says it works better than the shots. Just another option. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
Sandy H is offline   Reply With Quote
Old 03-21-2007, 04:19 PM   #5
Grace
Guest
 
Posts: n/a
Sandy--excellent idea and one my husband will like very much. I'll give it a try when I'm feeling human again, probably in two or three days. Thanks much.
  Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:38 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter