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Old 03-15-2007, 11:22 AM   #1
LAURIE
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Location: Massillon, Ohio
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first tattoo today

I am very proud of my 3 new little tattoos I got today. I really thought it was going to hurt (she said she was real gentle with me). It hurt less than gettting my finger pricked. I start Rads next Thursday. I love the smell of the Biofine lotion my doc prescribed. I also got my second Lymphedema glove today. First one was too small. If I could just get this fat hand under control, my acne to clear up, and my hair to grow more evenly I would be a happy her2 girl.
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 03-15-2007, 11:49 AM   #2
Sheryl H
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Good luck with rads

When I told my kids and my niece and nephews that I had tattoos now, they were so impressed. At least they were until I told them they were just four little pin pricks. Oh well.

Good luck with the rads. I did pretty well with that. Just be sure to drink lots of water and rest when you need to. I used aloe vera gel, which worked really well for me. Had a boost the last eight treatments, and that skin got pretty red. Ended up using a prescription cream then. Also used aquaphor on the part that received the boost after I was done. That skin felt like leather. Only one or two treatments though with the aquaphor, and it was much better. Don't use deodorant. Someone told me to eat lots of protein. You probably already know all of this, but just in case.

I'll be thinking of you.
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Old 03-15-2007, 01:48 PM   #3
janet11
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My rad center didn't use tattoos. Instead, they used blue sharpies (almost permanent ink) (green for defining the boosts field and markers). It was SO neat to see those marks fade daily in the shower (my last rad treatment was 2 weeks ago), but I was almost sorry I didn't have "tattoos" I could talk about (*grin*).

Just used aloe vera daily, and had almost NO problems. Turned faintly pink, some areas were pretty tender, and I had one burned spot under my arm that later peeled and finally healed. I suffered far more from anticipation than reality here.

Good luck!
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Janet in Rowlett Texas

Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007:
Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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Old 03-15-2007, 03:50 PM   #4
DonnaD
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Hi Laurie,
Look how far you've come! Everyone tells me rads is a breeze, and keep the cream handy. I got tattoos and blue perm. marker. I start March 28, so you will be 6 a head of me.

Good Luck and God Bless. We will do this!
Donna
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Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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Old 03-15-2007, 07:37 PM   #5
Jean
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Wink

Hi Laurie,

Just wanted to wish you the best of luck with radiation. It went well for
me. I would make all my appointment in the evening, ( I would take the
last appointment) this way when I was done I just went home and went to bed. I found that during the day it was too time consuming and exhausting. Just rest when you need it. Do not worry about the hair and the
rest - with that great smile of yours - you are a winner anyway!

Kind Regards,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 03-15-2007, 07:53 PM   #6
rinaina
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Laurie, you will find radiation to be a breeze compared to your chemo. You will probably still feel fatigued but that is about it. Use whatever you have to in order to keep your skin from responding poorly to radiation. My radiologist oncologist advised me to use aloe gel everynight whether I needed it or not and I really didn't have much of a problem at all with discomfort. I am still discolored from the booster dose and that area seemed to get more color than anywhere else. As for the hair...through all of this, the hair thing has been the hardest for me next to getting sick from chemo. My hair is back and is close to 1 1/2 to 2 inches all over depending where and it is so curly,(never had curly hair before). Not crazy about it but it is hair at least. I finished chemo July 27 so it took this long to get to this point. Hope all goes well with rads.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-15-2007, 10:32 PM   #7
tousled1
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Laurie,

Radiation will be a breeze in comparison to chemo. Fatigue will become an issue just due to the fact that you must go every day. My radiation oncologist gave me aloe vera cream to use starting day one. Make sure you use cream everyday but not right before treatment. My last five treatments were boosts and that's when I developed some real soreness in the area. I then got a prescription cream from radiation oncologist and it cleared it up in a few days. About a week after I was finished you couldn't even tell what side of the chest had been radiated. You'll do fine. Just listen to you body and rest when you need to.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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