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03-15-2007, 08:53 AM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 27
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vaccine
there is a clinical trial going on at Memorial Sloan Kettering in New York City for a herceptin vaccine. It's phase 1 of the trial. The information is on their website.
i'm really not sure if i'd want to be on a phase 1 trial.
i would like to try it but think i'd rather wait for phase 2 when they actually have more information.
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03-15-2007, 09:05 AM
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#2
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Senior Member
Join Date: May 2006
Posts: 143
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Hi Belinda:
THe University of Washington, in Seattle, has been doing lots of work on Her 2 vaccines. Some women on this site are participating. The main doc is Mary Disis. If you search the web and this site, it's easy to find more info. Can someone else post the web address and the name of the assistant (Patty??)??
L
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03-15-2007, 09:12 AM
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#3
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Senior Member
Join Date: Aug 2006
Posts: 492
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I am doing the her2 vaccine (DNA plasmid) at Univ Wash in Seattle. They have hotel that will give you a medical rate (about $70 a night I believe) and a free breakfast and shuttle to the medical center. Because the trial is sponsored by the government, they can't offer to pay for any travel or lodging expenses. There are organizations that can help with flights (angelflight, etc.), but sounds like you can have Quantas fly you. The trial is 7 visits to Seattle over a 15 month period.
The research coordinator is Patricia Fintak 206-543-6620 paf3@u.washington.edu
They are terrific!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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03-15-2007, 10:23 AM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 27
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vaccine
You can contact Teresa Gilewiski, M.D. here in New York at Memorial:
212 639 5451
They are definitely recruiting for Phase 1 if you quailify.
They will not pay for accommodations.
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03-15-2007, 10:30 AM
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#5
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Senior Member
Join Date: Mar 2006
Posts: 4,780
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judging by your profile you are stage I
Most vaccine trials are for stage 4 I believe. An exception is the one out of Wyndber, Pennsylvania(perhaps there are more). I am sure someone can post the info for it. Hard to get to by plane, train, etc and not sure they have one for someone still on herceptin/who have had herceptin. You should check with them--it is called the Joyce Murtha Cancer Center. Try googling it if no one chimes in to provide the missing info.
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03-15-2007, 11:09 AM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Vaccines for early stagers
The U of W has more than one trial. They have different targets and requirements. There is a link in the index of this site for those trials. Some accept early stagers and you just have to be less than 6 months off Herceptin.
(I believe that micheleu and Margerie are stage III.)
Checking with Patty at the number Marge gave is the best bet for sorting out the possibilities.
Good luck!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-15-2007, 11:25 AM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 492
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Yes, I am stage 3 and the trial I am on allows herceptin, bisphosphonates and AI's.
Here is the link to the bc trials they are recruiting patients for:
http://depts.washington.edu/tumorvac/trials.php?s=s0
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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