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03-13-2007, 11:08 AM
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#1
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Chelee - still out there?
Anyone headrd from Chelee lately. Last I knew she was "battling" her HMO but I have not heard anything recently. Any news would be appreciated...
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-13-2007, 10:31 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Hi Mel, I am still hanging in there. Seems I live on the phone lately thanks to the way my HMO and medical group has done me. They can't totally abandon me I found out until I am set-up some where else which I am looking forward too. But there is much to be worked out still. I am mentally and physical exhausted.
But for now...they finally ok'd my surgery for a simple mastectomy for this Thursday. I've been having alot of pain in my remaining breast for 6 months now which they have ignored. I've had to force them to do a mammo, ultrasound and then Mri. They found 4 masses consistent with lymph nodes and they don't seem concerned. (Which I would be happy about if not for the constant pain I have in that breast & axilla.) So I will have this mastectomy Thrusday morning and they will take a look then to see whats going on? Then I have to wait for the results from the path Dept. Should they find something I will go back into surgery again a week later. I pray all this pain is caused from something benign.
Thanks for thinking of me Mel. I've just been a bit down lately...but things will get better. The fighting with the HMO and group is just a bit much. Heck, even the case manager called here the other day to GRILL me before I could have my surgery. (Its a long story, but no one should be treated like this.) Thanks again Mel...your one in a million. You have had your plate full and been so busy with such a BIG accomplishment, one you should be so very proud of…and yet you are kind enough to think of me. What a lucky women Lisa was. I bet she can’t wipe that smile off her face. God bless you.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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03-14-2007, 05:36 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Thanks for responding!!!!
Know this deep in your soul - you are in my thoughts and prayers. If there is anyway I can be of assistance - ASK!
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-14-2007, 06:13 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Mel, Your really too kind. Thanks so much for the thoughts and prayers as I can really use them right now. Surgery in the morning and I am nervous...but this too shall pass. 
Thanks a million Mel
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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03-14-2007, 06:20 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Best wishes on your surgery Chelee! Hope all goes really well and you regain some peace. Prayers and belief, mary anne
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-14-2007, 06:45 PM
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#6
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Chelee, I'll be sending my thoughts and prayers to you for your surgery tomorrow. I really admire your spirit and can-do attitude! Thinking of you tomorrow,
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-14-2007, 07:19 PM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Chelee,
I am hoping all goes well for your and that you are free from pain and regain peace of mind. You will be in my thoughts.
Hopeful
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03-14-2007, 07:56 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 823
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Chelee Prayers going to out you for your surgery.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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03-14-2007, 07:58 PM
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#9
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Senior Member
Join Date: Aug 2006
Posts: 492
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Hoping you have a quick recovery. It will be a blessing to get those painful whatevers out of there!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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03-14-2007, 08:26 PM
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#10
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Best wishes Chelee. Hope all goes well and you can rest easier.
Bev
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03-14-2007, 08:52 PM
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#11
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Hope your surgery went well and you have an easy recovery. Best of luck with everything. Thoughts and prayers are with you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-14-2007, 10:53 PM
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#12
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Margerie, I had to laugh at your post. (My painful whatevers.) Ha! At this point...thats exactly what they are. I sure hope this gets to the bottom of those *painful whatevers*. Its been a painful 6 months and I want it to come to a end. If this is what it takes...so be it.
I am more nervous now that its "D-Day". It sounded so easy until today and the reality kicked in. I am truly over whelmed by all the warm wishes and support from all of you. It brought good tears to my eyes tonight. Helps me not feel so alone. Thanks so much for all the prayers...I sure need them.
Thanks to each and everyone of you.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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03-15-2007, 06:48 AM
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#13
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Chelee,
Praying that you have good results and a quick recovery.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-15-2007, 03:42 PM
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#14
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Good wishes from me also Chelee for a sucessful surgery and quick recovery.
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-15-2007, 06:57 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Chelee,
Hope all has gone well and we hear from you soon.
________
butt Cams
Last edited by sassy; 08-22-2011 at 09:11 AM..
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03-15-2007, 07:57 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Smile Chelee
I hope you are doing well. I am thinking of you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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03-15-2007, 09:30 PM
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#17
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Chelee,
Prayers and all the positive forces are with you!
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-16-2007, 05:14 PM
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#18
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Dearest Chelee, I am thinking of you today as always. I went skiing for a few days last week and got you email. I am praying for you and sending you my love. You are an inspiration to me (you don't ever give up!) Much love and Hugs Vickie
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03-16-2007, 11:00 PM
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#19
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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I managed to get through my surgery. I'm a bit un-comfortable at the moment...but thats to be expected. I had a hard time making a decision to stay at the hospital one night or come home. But I eventally decided to come home to my own bed which was the right choice. If nothing else, you get more sleep at home
I am glad to have this behind me. My chest seems more bruised and discolored this time verses last year with my MRM? Maybe I just can't remember? This was a simple mastectomy and it looks worse? Swollen and black and blue all over...and very sore. Couldn't get my surgeons office today so I will assume its ok? Thanks to everyone for your thoughts, well wishes and prayers...its no doubt what got me through all this.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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03-17-2007, 03:44 AM
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#20
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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So happy to hear that is behind you now. Hope you heal up fast and are back on you feet and having fun soon!
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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