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02-28-2007, 09:01 AM
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#1
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Senior Member
Join Date: May 2006
Posts: 144
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My signature includes my diagnosis & treatment so far. As you can see, while still on Herceptin I developed a recurrence. Today I go to find out the result of PET/CT & biopsy to see what I need to do next.
So I was initially Stage 1, now I'm not sure.
- Anna
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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02-28-2007, 09:10 AM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 161
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My history follows:
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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02-28-2007, 09:33 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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as you can see by my signature, I had a small tumor...glad you started this thread, will be interested to follow it!!! Right now I am wondering what types of scans I should have for follow-up. My oncologist does not believe in "routine" scans in a case like mine (early stage...etc.) but says any scan I want to have, she will order it.
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-28-2007, 09:34 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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ps. I was 54 yrs old at time of diagnosis!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-28-2007, 10:05 AM
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#5
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Senior Member
Join Date: May 2006
Posts: 144
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I didn't have any scans during treatment or after, until the recurrence was found. My onc. said for early stage the only followup would be bloodwork, physical exam ev. 3 months, and how I was feeling. She said scans can have false positives.
Because of the lump I found my onc. ordered a whole body PET/CT.
- Anna
p.s. 49 & pre-menopausal at initial diagnosis.
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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02-28-2007, 10:50 AM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 476
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My dx and treatment (or the lack of) follow. I just saw my onc yesterday and we discussed the possibility of metastasis. He said that for HER2 positive patients, the recurrence, if it ever happens, will be from 18 to 24 month on the average. For HER2 negatives, the danger zone is about 4 to 5 years. The micro invasions will take that much time to build up to the point of detection or symptoms. Whether I got chemo or not, the consequence is only a few percentage. For the risk of improving that little margin of advantage, the trade off is the danger of chemo and radiation. Of course, my option of doing mastec shifts the odds in my favor for a few points. Overall, he had no objection to my own decision. I work in a large hospital and have seen many cases.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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02-28-2007, 11:22 AM
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#7
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Senior Member
Join Date: Jun 2006
Posts: 153
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I was 35 and premenopausal at diagnosis. I had 4.2 cm of DCIS grade 2/3, and 7mm er/pr- her2+, SBR grade 2 (6/7), mitotic count of 1, sentinnel node negative, no lypho/vascular invasion, no neural invasion.
5/05 clean PET/CT scan clean other than left breast
6/05 bilateral mastectomy, one side of recon failed with infection
8/05-11/05 4 AC
11/05-12/06 Herceptin for 1 year
10/05 head CT scan and chest xray both normal
3/06 bone scan normal
10/06 transvaginal ultrasound normal
11/06 abdominal CT normal
12/06 chest xray normal
1/06 bilateal DIEP reconstruction
__________________
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02-28-2007, 12:21 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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1.6 IDC,DCIS HER2+++,ER+,PR+, no Herceptin
By small, do you mean stage 1/under 2 cm, Janet? If you do...
1.6 cm IDC with DCIS
HER2+++, no FISH, ER+ PR+
Age at dx, 51
NED following CAF x 6, IMRT, hormonal treatment
5 years out
1 brain MRI last year for vertigo/falling plus mildly elevated LFTs (normal)
annual mammos
1 bone scan at dx, 1 bone scan last year
1 DEXA scan
2 chest/abdomen CTs (normal) for unresolved right-sided pain
1 chest MRI (normal)
AlaskaAngel
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