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The only other suggestion I can give you is you may want to call Joe and Christine founder of this board. They can be very helpful and are advocates for Tykerb working on our behalf. They have helped several of us to get into a trial. Their number is 760-602-9178. They also live in Ca. Let us know how you make out. Sending you a big hug, keep fighting and we are here to help and listen. Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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