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01-31-2007, 06:24 PM
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#21
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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That is so AWESOME! You deserve a break..I am so glad herceptin has worked so well for you. I pray we all are so lucky...  ...sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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01-31-2007, 07:59 PM
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#22
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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What wonderful news, Steph! I know you will enjoy every minute of this break...Thank God for this time of peace and renewal!
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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01-31-2007, 08:49 PM
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#23
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Senior Member
Join Date: Sep 2005
Posts: 312
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Great news Steph, now don't forget to post in three months all of the changes you have noticed after you quit! LOL
Hugs
__________________
Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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01-31-2007, 09:00 PM
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#24
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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WOW!!! How wonderful, Steph I know you'll really enjoy this break, and here's a toast to it being extended again, and again, and again........
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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01-31-2007, 09:36 PM
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#25
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Steph, Keep up the good work. BB
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02-01-2007, 03:37 AM
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#26
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Senior Member
Join Date: Mar 2006
Location: Iceland
Posts: 31
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Congratilations Stephanie. This is fantastic news and enjoy the break. You are a role model for me.
Best regards
Jóhanna
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02-01-2007, 08:15 AM
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#27
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Steph,
Congrats, and enjoy your break from it all !!!! I am so happy for you !
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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02-01-2007, 08:23 AM
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#28
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Wonderful!
That's the best news I've heard in a long time. Congratulations!
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02-02-2007, 09:36 PM
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#29
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Way to Go!
Just wanted to join the others in saying "Congratulations and a Big High Five to You!" That is just awesome news Steph.
Kim in CA
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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02-02-2007, 10:57 PM
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#30
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Happy Day
Great News so very Happy for you. Wishing you continued success.
Hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-03-2007, 12:57 PM
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#31
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Way to go!!!!!!!!!!!1 I am so happy for you enjoy every single second of your break!!!!!!!!!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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02-04-2007, 01:14 PM
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#32
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Steph
You are sooooooo lucky, a break from all of this. I would welcome that, but it doesn't seem to be here yet....enjoy being unhooked from the "IV rope"....you deserve it!!!!!!!!!!!! I am so jealous!!!!!!!!!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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02-04-2007, 07:51 PM
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#33
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks for updating us and for giving many here hope!
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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02-04-2007, 07:52 PM
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#34
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks for up-dating us and for giving many here hope! There is light at the end of the tunnel...good for you and congratulations.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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02-04-2007, 08:34 PM
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#35
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Congratulations on your great news. I hope you have a very long and wonderful holiday!!!!
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02-04-2007, 11:37 PM
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#36
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Steph, That is just wonderful news. What a nice change that will be...your going to feel like your forgetting to do something. But I am sure you will get over real fast.  This sure is a well needed and deserved break. What will you do with yourself? lol
That is just awesome news...I am so happy for you. Enjoy your time off...as I am sure you will. Way to go Steph! Wooo Hooo...
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-05-2007, 09:24 AM
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#37
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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another voice in the chorus...
of good wishes for your break and excitement for your continued great news!!! It would be great to continue to hear from you during your break, but, boy, I'd get it if you just want to be free of all of this! have fun!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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02-05-2007, 12:24 PM
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#38
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Thanks for such lovely replies!
A break from Herceptin does not mean I am away from this board.
There are too many great people here that I like to know how they are doing and especially that things are OK. So, when I read good news (even "stable" news) from others it gives me a lift too.
For those who are just beginning to battle or are having to go another round, I hope to help answer any queries or problems when I can.
Otherwise, my poor hubby has been down for a few days with the worst cold he has had in years. So, I have been trying to help him feel better while avoiding the bloody thing myself. He felt so bad we did not even keep discussing our immediate plans for upgrading the house or travel!
Then there is my DAD to worry about. He is having some heart problems and waited before going to his doctors. We noticed his problem at Christmas and he promptly went to his docs and is now undergoing a battery of tests to see what is the best action from here. So, as much as I want to travel right now, I feel like I need to stick close to my parents until there is more information.
Wish I could have IT ALL, but that is not in the cards right now ...
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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02-07-2007, 09:33 AM
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#39
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Senior Member
Join Date: Jun 2006
Posts: 44
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What Great News, Steph!
Hi Steph,
This is wonderful news for you and a great way to enjoy 2007!! Happy Valentine's Day...go enjoy.
Love and warm hugs from CA.,
Vicki
P.S. Love your new photo, too!
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02-10-2007, 08:29 PM
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#40
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Steph great to hear your goog news. I'll be interested to hear how things go for you off of Herceptin. I know we've talked about how I'm a year behind you in duplicating your footsteps, and a herceptin break is something I have wondered about.
Enjoy your break.
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