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Old 01-26-2007, 08:36 AM   #1
tousled1
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Question Anyone hear from MaryAnn

I noticed that Mary Ann (madubois63) hasn't posted in a while and was wondering if anyone has heard from her? The last post I remember is around the holidays after she had the bone marrow transplant and had just come home. Anyone know how she's doing
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 01-26-2007, 09:05 AM   #2
Sandy H
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I asked about her a couple weeks ago and someoneposted she was home recovering, I believe, medical issues from the transplant. It is my understanding there is much more that goes along with these transplants then we realize. If it works it takes care of a life threatening problem and yet that person has to deal with many others. I hope she is doing well and hope to hear from her. Of course, her computer maybe down. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 01-26-2007, 10:58 AM   #3
sarah
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I hope we hear something soon and that things are going well. She's a wonderfully special woman.
sarah
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Old 01-29-2007, 05:20 PM   #4
Donna
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worried now

Hello,

Is there anyone who can contact her to make sure she is okay? She was so good at posting and keeping us informed of her progess, it's troubling that she hasn't posted in awhile - maybe she could use our help?

Donna
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Old 01-29-2007, 05:38 PM   #5
lexigirl
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Maryanne,

Thinking of you and praying that you are doing well. Can't wait for an update.

Hugs and Prayers,
Lexi
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Old 01-29-2007, 06:57 PM   #6
Sandy H
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Just letting you know!

I have sent Maryann a personal e-mail as we have e-mailed in the past. I will let you know as soon as I hear anything. I am getting worried at this point and hope its because her computer is down. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 01-29-2007, 07:21 PM   #7
tousled1
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Thank you Sandy. I'm saying a prayer that all is well with MaryAnn and that she is just taking it easy during her recovery.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 01-30-2007, 04:48 PM   #8
rinaina
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Also praying that all is as well as can be expected for Maryanne. She has definitely touched us all and become such an inspiration as well. Sure hope all is okay and she is just busy recuperating.
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Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 02-04-2007, 07:00 PM   #9
tousled1
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I am bringing this post up to the top again in hopes that someone has news about MaryAnn. I truly worried about her and hoping that she is just slow in recovering from the bone marrow transplant. If anyone has heard from her please let us know.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 02-04-2007, 07:41 PM   #10
Sandy H
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Getting very concern!

I am now very concern for her and so wished someone would answer our post. If I had her phone number I would call her but I don't. I do have a few others on the board but not hers. We will just have to keep praying for her. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 02-04-2007, 08:41 PM   #11
Bev
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You're right, MA isn't usually silent so long. Praying she is getting better. BB
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Old 02-04-2007, 09:40 PM   #12
tousled1
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Sandy,

Do you think Joe would be able to get in touch with her?
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 02-04-2007, 10:27 PM   #13
Monica
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I noticed that Mary Ann posts on the AOL breast cancer support board - Stage 4 Amazons, and as of Jaunary 24, she seems to be doing all in all okay. Her message is called "Still kicking" on the board.

Best,
Monica
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Dx Nov 2003 HER2+++, ER+, PR+
1.7 cm. left breast, Grade 3, Two nodes out of six, stage IIA
Mastectomy right side
Lumpectomy left side
4 A/C, 4 Taxol plus 49 weeks herceptin
Radiation on left side
No tamoxifen or other hormonal drugs
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Old 02-05-2007, 05:53 AM   #14
sarah
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yes it would be nice to get a real update on Maryann who has been such an inspiration to us all and is such a good writer. Obviously we are all thinking about her, hoping for her quick recovery and to read about her news.
Maryann, I send love and positive energy to heal you and let you know how much you are cared about by all of us. You ahve been so strong for all of us, let us be strong for you.
love and hugs
sarah
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Old 02-05-2007, 08:51 AM   #15
Andi
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My prayers and positive thoughts are, too, going out to Maryann.
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Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 02-05-2007, 10:25 AM   #16
Sandy H
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Still trying!

I do have Maryann's phone number. I called her this morning and there was no answer, now I am really concern. I left my number and said she can call me or post on the board here. If I hear from her I will post ASAP with her permission. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 02-05-2007, 10:34 AM   #17
Sandy H
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Still trying!

I do have Maryann's phone number. I called her this morning and there was no answer. I am really concern now. She maybe staying with family. I will let you know as soon as I hear anything. I left my name and number.

Monica, are you sure its the same Maryann? It surprises me she is posting on another board and not keeping us updated. Just does not sound like her. Did you see this post on BCMETS board? I saw on one of the board, while lurking, there is another Maryann that had a transplant about the same time. At first I thought it was her but it wasn't. Hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
Sandy H is offline   Reply With Quote
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