Herceptin Joint Pain - Does it last the whole year??

[momdeeco]

Does anyone know if mixing Herceptin with sterile water instead of benzyl alcohol helps with joint pain. Will be getting my 5th does this Wed. My knees and hips are so stiff when getting out of bed or from a chair. Does anyone have and suggestions for the joint pain/stiffness. Although I'm not complaining if this is want it takes to be NED. I don't post often, but read posts every day. I am thankful for this site.

[tousled1]

Momdeeco,

Yes, reconstituting the Herceptin with saline water does help! I am receiving Herceptin only and have been plaqued with bone/joint pain. My last 2 infusions I had them reconstitute the Herceptin with saline water and what a difference it made! Tell your oncologist that you want the herceptin reconstiuted with saline water and I know you too will notice a dramatic difference in the amount of bone/joint pain you experience. I was at the point that I was ready to quit the herceptin all together I was in such agony. Now, I know I can finish out my year.

[Sandy H]

Wow, Kate that is good you are feeling better. Thanks for sharing that piece of info with us. I am sure there will be others that will want to try it. I wonder why they use the other? It would make sense to me to use the saline. Less toxic to the body I would think. There must be a reason. Good luck with the Herceptin. hugs. Sandy