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01-07-2007, 08:32 PM
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#1
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Senior Member
Join Date: Jul 2006
Posts: 869
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Lung Nodules-good news
Greetings to everyone. I have some good news to report. When I went to my chemo appt. last Thursday I was told by the clinical trial nurse, oncology nurse and my doctor that my 2 lung nodules could no longer be seen on the ct scan. I was so glad!! There was a small density in the pleural lower lung -saw it in the report, but my doctor did not mention it..hope it is nothing. I do worry about more recurrences though--I will have another Muga soon and Pet scan. Happy for now! My Navelbine is being decreeased but will continue on with Xelodaand Herceptin, too. Do you ever stop chemo when you are Stage IV?? Ceesun
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01-07-2007, 08:47 PM
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#2
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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When my lung nodules cleared up, I immediately was take off the Taxotere and Xeloda. This was after the minimum 5 rounds of treatment. But I have been on Herceptin weekly ever since. My Oncologist was talking about switching me from Herceptin to Tykerb when it came out, but I wouldn't mind being on both...he's OK with that also. I think most stage IV's stay on some sort of chemo, even if it is just targeted...sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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01-07-2007, 09:17 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Yeah. Celebrate. BB
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01-08-2007, 04:20 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Congratulations on your good news!
My doctor believes in chemo holidays - particularly if you have Herceptin to keep things stable. When she first told me this, I freaked because I thought we stage IV-ers needed to be on constant chemo.
I'm now a firm believer in the less chemo, the better - so much of our ability to heal and fight this disease depends on us having the "resources" (as she put it) to stay in the fight. Chemo holidays give you the chance to strengthen your resources for the next battle.
Besides, you get a "new hair" day!
Keep up the good work!
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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01-08-2007, 04:30 PM
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#5
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Congratulations..
Dear Ceesun; You mentioned your navelbine being decreased, did you mean that you will continue on it...or is it being discontinued for now...Were you on Xeloda+herceptin+Navelbine...Any side effects with the xeloda...Stay Positive...
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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01-08-2007, 04:35 PM
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#6
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Tyerb+herceptin
Dear Sherry: My onc mentined Tykerb, (not available at Kaiser for now), and said that if I needed to be put on tykerb, he will never discontinue Herceptin..He said that the consensus among oncgs. is that herceptin will continue working regardless of what chemo is added to it..herceptin helps chemo to work better against the tumor, no one knows why, but the results shows that's the case, especially for mets to any organ(s) in the body. So I won't discontinue Herceptin, unless there is some information to the contrary. Stay positive..
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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01-09-2007, 07:44 AM
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#7
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Ceesun - congratulations on your successful treatment. I am just beginning the navelbine and herceptin, I hope it will work for me too. My prayers are with you.
__________________
Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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01-09-2007, 04:27 PM
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#8
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Senior Member
Join Date: Jul 2006
Posts: 869
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thanks to you girlfriends! Hope all goes well for all of us. My current treatment is herceptin with navelbine and xeloda. This is part of a clinical trial my doc recommended. He is decreasing the navelbine by around 20% I think due to some numbness in my fingers-dropping keys, spoons, pens at work etc. Perhaps also due to the scan--will check on that next week. Ceesun
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