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12-25-2006, 03:52 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Joe and Christine
thankyou so much for this site. For me personally it has helped inform me ( I am in Australia) of what is happening in the Her2 world. The wonderful people on this site have helped advise me , comfort me and support me at difficult times.
i have found it particulalry sad this year with the loss of women I had grown to love.
Thank you again
Linda w
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12-25-2006, 07:24 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Thank you again to the superb team! Wishing you the best for holidays.
Big hug,
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12-25-2006, 07:30 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear Joe and Christine,
Thank you so much for the information that you share with us. 16 mos ago I was diagnosed w/ her 2 pos bc. I was sure that my life was over then and there. Having her 2 support has been a lifeline for me. I don't think I could have gotten through this as well as I have without your valuable site.
Losing our dear bc sisters has been awful tough to read. But, we are here to support each other in good times and in bad. My prayers are that 2007 will be a blessed year for each and everyone of us. You all are in my prayers daily.
Hugs and prayers,
Lexi
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12-25-2006, 07:47 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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We have come so Far - thanks to people like you!
Thanks for the update that puts things into perspective Christine. I can't believe the changes that have taken place in just the short time I have had cancer. I long for many more changes - for the shot that prevents cancer in my children and their children's children... sigh. Keep up the good work, and thank you so much for your kind dedication to those of us you may never meet, but sacrifice for daily.
We are ever in your debt....
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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12-25-2006, 08:37 PM
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#5
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Senior Member
Join Date: Apr 2006
Location: Boston
Posts: 66
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Dear Christine and Joe,
Thank you for your eloquent Christmas/Anniversary letter to the Her2support community and all you do to stay on the forefront of medical advances and keep us all connected.
Congratulations for 5 years of providing emotionally and physically life-sustaining support through this exemplary website -- and many blessings to you in 2007!
Emmay
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12-25-2006, 11:15 PM
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#6
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Senior Member
Join Date: Jun 2006
Location: Grand Terrace, Southern California
Posts: 114
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Congratulation on your 5th anniverary for a successful forum, dedication, and hard work. I am truly bless to be apart of your support group. Thank you Christine and Joe.
Merry Christmas!
__________________
04/97- breast bx. diagnosis breast cancer.
05/97- radical mastectomy; 5cm tumor & 11 lymph nodes.
10/97- City of Hope, high dose chemotherapy.
11/97- 36 radiation therapy.
01/98- NED; tamoxifen.
02/02- breast reconstruction.
08/04- recurrence; mets to rt lung; thoracentesis; femara.
09/04- thoracentesis; ER/PR +, Her2+++.
10/04- total abdominal hysterectomy.
02/06- mets to 9th rib; monthly zometa; arimidex.
06/06- medi port insert; weekly herceptin.
10/06- 3 weeks herceptin treatment.
02/07- mets to liver; arimidex
11/07-liver clear
02/08-chemo taxol/herceptin weekly treatment
12/08-taxol not working
01/09-navelbine/herceptin weelky
03/09-navelbine not working
04/09-xeloda/tykerb
09/09-30 radation to neck; xeloda/tykerb not working
11/09-Gemzar/herceptin weekly
04/10-tykerb/herceptin weekly
06/10-cancer spread to left lung;stop treatment; tap
07/10-right lung collasps; TDM1
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12-26-2006, 12:10 AM
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#7
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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A bridge to sanity ...
Like Kate mentioned, many of us would have "lost it" if we did not have somewhere to turn for understanding and information. That includes me, and the hard part is that some of the women who welcomed me here and gave me some words of wisdom are no longer here in the flesh. But, there are others to come into the picture and who need the same help at various stages of their disease and treatment.
The cycle continues.
It is a very special sisterhood indeed, and I am honored to have a part in assisting anyone who comes to Seattle that I can make things a little easier or fun during what can be a rather stressful time.
We owe it all the Christine and her very "obedient" husband Joe, who put her idea into practice.
MERRY CHRISTMAS TO ALL AND TO ALL A GOOD NIGHT!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-26-2006, 07:30 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: NYC
Posts: 250
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With many thanks to this site, and the wonderful men and women who participate, I've been able to live my post-dx life with hope. It is a priceless gift, and one for which I am very grateful.
Wishing you a very Happy New Year.
Jen
__________________
dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com
"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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12-26-2006, 01:26 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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You've created a wonderful caring community - no maybe an extended family and the information and support are so appreciated and important. I feel less alone.
many, many thanks
sarah
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12-26-2006, 03:33 PM
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#10
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Member
Join Date: May 2006
Location: Vashon, WA
Posts: 11
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Thanks for giving us hope!
christine, i have never met you but i look forward to meeting you in the future. thanks for all you have done to give us hope! we are indebted to your devotion to this cause.
sincerely, sara
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12-28-2006, 11:05 AM
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#11
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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When one considers....
what has been accomplished because of this site in only five years, it is
just amazing! Just imagine what will be accomplished in the next five years.
Maybe a cure! God Bless both Joe and Christine.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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12-28-2006, 01:54 PM
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#12
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Christine and Joe
I am new here and have found a home with all the wonderful women and the help from Christine and Joe. Knowledge is power. Thanks
patb
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01-01-2007, 05:32 PM
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#13
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Senior Member
Join Date: Jul 2006
Posts: 869
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My heartfelt thanks to this wonderful website--we are in a sisterhood we never wanted to join (and brothers, too)-thanks to everyone. May God Bless. Ceesun
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01-02-2007, 09:23 AM
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#14
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Senior Member
Join Date: Sep 2005
Posts: 182
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Bridge to sanity and hope
Steph said it right, this site has been and continues to be my bridge to sanity and hope. The information I obtain from all your comments and the synergy of all the people on the site doing research and banding together is phenomenal. When ever I start to lose it I login-in and seem to always find the right information to give me hope. To all who actively participate and Christine and Joe for creating and maintaining this site I wish you all a peaceful and healthy new year.
Kay (KK1)
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01-04-2007, 02:09 PM
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#15
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Christine, not only do we owe abundant thanks to you and Joe but you have continued to make us hopeful and thinking positive with your updates. Thanks again for reminding us how lucky we are to have her2 verses any other form of bc. I always know where to turn if I need to feel better. Happy Healthy New Year.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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