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Old 12-25-2006, 03:45 PM   #1
gin-tx
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Join Date: Jul 2006
Posts: 146
Diagnosis and Status

Dear Kari,

Sorry it's taken me so long to get back with your request for info, between working part time and treatment there isn't a lot of time to spare. I hope this finds you doing well, you'll have to let me know your status also. I was originally diag with bc in Dec 1995. Nothing showed up until April 2006, had biopsy and dr thought it looked good. He called me 3 days later and said it was malignant but did not know how severe it was, did wider margins, one lymp gland positive, all other tissue was fine. During course of various tests something discovered on my spine in body scan, had MRI, it was malignant tumor pressing on spine, onc sent me to radiaiton oncologist who said treatment had to begin immediately, also had port installed, 18 radiation treatments with side effects to esyphogus, digestion, swallowing, etc. Still have a few of those, am taking Herceptin and Aridia every 3 weeks, holding my own, nothing new has showed up. I have to get CT end of Jan. See if lungs, liver and spine are still same status. Some days I feel real good, others not so hot, try to take each day as it comes.

Keep me informed of your status and where you are with treatment.

hugs,
ginkott1@aol.com
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Old 12-27-2006, 04:31 PM   #2
Susan McQ
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Join Date: Dec 2006
Location: Columbus, Ohio
Posts: 33
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This is my info.

dx 2/6/06 with IDC stage 2 rt breast @ 39. 4 AC's completed in April 2006. Started weekly Taxol/Herceptin May '06 completed August '06. Complete response to chemotherapy.
Lumpectomy 8/15/06 NED.
33 Rads completed Oct '06
Weekly Herceptin to be completed May '06 (1 year total)

Last edited by Susan McQ; 12-27-2006 at 04:32 PM.. Reason: added stage
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Old 01-01-2007, 07:27 PM   #3
mamacze
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Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
Hi Becky,
Are you compiling information?
My stats:
2001; Stage 0 Rads and tamoxifen
April 2004 lumpectomy, er/pr neg, Her 2 neu Plus 3 scans, stage 4 with extensive mets to the lungs, Navelbine and Herceptin
October 2004 to date: NED
Love Kim from CT
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Old 01-01-2007, 07:33 PM   #4
Adriana Mangus
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Join Date: May 2006
Location: California
Posts: 668
Question Questions

Dear Kim: In reading your response to Becky you mentioned Navelbine and Herceptin and being NED since Oct'04. How long were you on that combination? What is on 1 side or both lungs? Are you now on Herceptin-just Herceptin?
I will appreciate your response. Thank you Kim.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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