 |
12-25-2006, 08:03 AM
|
#1
|
|
Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
|
Again another thank you for all you do for us. This is one of my lifelines. Nearly, 6 years ago, diagnosed with IBC and her2, I was given no long term survival from several doctors. Well, today I am happy to say I am still hear and I do consider 6 years in March long term! My quality of life is good and I am enjoying every minute of it. Christine is right we have come a long way and will continue to do so. Sending you all a big Christmas hug and a Happy healthy New Year. I said a prayer last evening for all our families on this board who are with out their loved one today. Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
|
|
|
|
12-25-2006, 11:17 AM
|
#2
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
I want to thank you from the bottom of my heart for all you do to keep this website up and running. I also want to thank all the wonderful women here. Since I really do not have anyone that I can personally lean on for support, I surely would have lost it many times if it had not been for the wonderful support, advise, and knowledge of the women on this website. I wish everyone here a Very Happy Holiday and a Happy, Healthful, Prosperous New Year.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
12-25-2006, 12:59 PM
|
#3
|
|
Senior Member
Join Date: Nov 2005
Posts: 943
|
Thanks Christine, and a very Merry Christmas to you and Joe.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
|
|
|
|
|
12-25-2006, 02:17 PM
|
#4
|
|
Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
|
Thanks so much Joe & Christine for this site. It, too, has given me much hope. Best of everything and Merry Christmas!
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
|
|
|
|
|
12-25-2006, 03:38 PM
|
#5
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
5 so important years!
Thank you for stepping out and leading the way for all of us! This site has been a life raft to me each and every day! It educates me, inspires me, and helps me make each tough new step so much easier! I have a friend just diagnosed with thyroid cancer, just as her son turns 4 months old! As I wrote a note to her, I reflected on how important this site has been to me and encouraged her to go on line and seek out lots of ideas and help! Thank you for 5 years that has and will continue to change so many lives. Merry Christmas!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
12-25-2006, 03:52 PM
|
#6
|
|
Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
|
Dear Joe and Christine
thankyou so much for this site. For me personally it has helped inform me ( I am in Australia) of what is happening in the Her2 world. The wonderful people on this site have helped advise me , comfort me and support me at difficult times.
i have found it particulalry sad this year with the loss of women I had grown to love.
Thank you again
Linda w
|
|
|
|
|
12-25-2006, 07:24 PM
|
#7
|
|
Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
|
Thank you again to the superb team! Wishing you the best for holidays.
Big hug,
|
|
|
|
|
12-25-2006, 07:30 PM
|
#8
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Dear Joe and Christine,
Thank you so much for the information that you share with us. 16 mos ago I was diagnosed w/ her 2 pos bc. I was sure that my life was over then and there. Having her 2 support has been a lifeline for me. I don't think I could have gotten through this as well as I have without your valuable site.
Losing our dear bc sisters has been awful tough to read. But, we are here to support each other in good times and in bad. My prayers are that 2007 will be a blessed year for each and everyone of us. You all are in my prayers daily.
Hugs and prayers,
Lexi
|
|
|
|
|
12-25-2006, 08:37 PM
|
#9
|
|
Senior Member
Join Date: Apr 2006
Location: Boston
Posts: 66
|
Dear Christine and Joe,
Thank you for your eloquent Christmas/Anniversary letter to the Her2support community and all you do to stay on the forefront of medical advances and keep us all connected.
Congratulations for 5 years of providing emotionally and physically life-sustaining support through this exemplary website -- and many blessings to you in 2007!
Emmay
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:10 AM.
|
Hybrid Mode