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Emmay,
I am so impressed with your sister's doctor/s. So many just 'give up' and say there is nothing left to do...
My side effect, given my dosage and schedule, from the Xeloda/Temodar is just fatigue and feeling 'icky' for a few days. I do take Zofran to avoid nausea caused by the Temodar. The only time I forgot the Zofran, I was up in the wee hrs, throwing up... And 200mg of B-6 'just in case' for potential H/F syndrome.
My oncologist devised my dose and schedule for me. Can't remember if I told you the details, but think I did. Will do so again if you need that info.
I want to thank you for the information you have provided here, as well. I am saving this to give to my own onc.
Staying hopeful,
hugs to you both,
pattyz
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