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Old 12-19-2006, 01:20 PM   #7
Johanna Johannsdottir
Senior Member
 
Join Date: Mar 2006
Location: Iceland
Posts: 31
Smile

Hello again an thanks for answers,


Heblaj01. Sorry, if I´m misleeding you but I forgot in this letter to talk about WBR I had in july, because for me it´s over and done with.

2002. jan. dx mastectomy. 25/25 nodes pos. er+pr+ , chemo, radiation and tamoxifen.

2005. aug. dx in bones. Put on Femara/Navelbine. Checked for HER2 and pos.
2006. jan. dx in liver. Stopped Femara/Navelbine and put on herceptin/taxotere 17 sessions. Liver was clean after 12 sessions.
2006. jun/jul dx. with four brain mets. 10 sessions of WBR. Stopped Taxotere (1 session left) Started Femara again and weekly herceptin.

CT-scan 12 of july shoved clean liver and I also had MRI. That was because I had asked another onc. (mine was away for holiday) june 23. to order a brain scan to check my brain because I was feeling strange in my head and had bad headaches. June 25 My sister took me to ER because of my status, talking nonsence etc. DX. that day with 4 brain mets. After six days the WBR started.

My onc. was back and gave me the results 13. july. He was surprised to see the brain MRI of course. Then I had 3 more times to go and he said that this was surprisingly good responce to treatment.
Another scan on liver and brain in sept. was good and then again this one 13 of desember. My tumor markers 15.3 was down to 77 in oct. from 147 in july. I will have another blood results next thursday.

As I was told by my onc its a theory that radiation activates herceptin, but whether it cross BBB I'm not sure. Everything in this combination is apparently working well.

There is alot of Q&A in this field.

Again sorry if I misled you all but I had previously posted my status. Things like this happens to people like me who think they are well known (Paris Hilton, Britney Spears and Johanna?)

Best regards,

Jóhanna
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