Sorry it took me so long to answer your post. I have been in San Antonio and just got home at 2:00 a.m. this morning and as you can see I am back on the board-its my family. I do have skin mets. I regret to tell you they are not only specific to IBC anyone can have them!! They can appear in different ways. When you say they are close to the mastectomy scar I would get them checked ASAP! The only way to know is if they do not go away in two weeks then get a punch biopsy- can be done right in the office. I don't want to scare you and if they are skin mets they are treatable and manageable. I have had them for 5 years now and we have been able to keep they localized and stable. I hope this helps if you have further questions and would like to e-mail me off the board please feel free to do it. Please keep us posted and let us know if the rash resolves or it does get diagnosed as skin mets and what she ends up with for treatment. Thanks for coming to us with this question. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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