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Old 12-11-2006, 09:08 PM   #1
Heart Sutra
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Question barium question (easy one)

Any advice on drinking the ridiculous amount of barium needed for a cat scan? Sue has to do so tomorrow, and we're wondering what people's experiences were?

Also picking up pathology report tomorrow. Lately, going to see either of the surgeons produces so much anxiety. She's doing great, and we're laughing and joking as usual, but just one moment alone and I start to feel all the stress.

I dread going back to work because I'll be away from her, and being with her is the only time I feel strong and sane. Feels like anything can be fixed when we're together. Apart, a broken shoelace takes on universal signifigance...
Crazy. Or as my son said when he was little....it's crazy cuckoo-nuts.


Nervous chatter's a part of it all, right?

---Kevin and Sue---
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Old 12-11-2006, 09:29 PM   #2
tousled1
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The barium they use now really isn't so bad. It's not the best tasting thing you'll ever drink but it does come in flavors now. As for the nervousness, I don't think that ever goes away. It's especially difficult when you have tests and have to wait for the results. At least you'll have the pathology report tomorrow and know exactly where you stand. I'm sending you wishes for a good pathology report.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-11-2006, 10:04 PM   #3
chrisy
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Berry smoothie?

MMMMMMM
Orange smoothie is a good one too!

More like a chalky bad impression of a smoothie! Drinkable, but not a "lets go out for a smoothie" treat!

I've honed my barium chugging skiils over the past few years and have found that, for me, it is easier to chug it (maybe it brings back flashbacks from college or something!).

For this reason I do not chill it - you don't need a head freeze, too. I put it in a glass and drink it as fast as I can - I usually stop a few times to take a breath and gag a bit - but it works for me! Putting it in a glass makes it better psychologically and easier than drinking from the bottle.

Depending on how much I have to drink (if I do abdomen/pelvis it's a double dose!) I sometimes experience, uh, digestive distress. I think my system wants to purge itself!

Usually when I go into the CT room, they hand me ANOTHER glass of the stuff just to top me off! YUM!

Seriously, it is not that bad.

Although you did not ask about this, if Sue is getting IV contrast (usually yes), that is injected in the CT room and you can feel it flowing through your body - it is a warm feeling, very unusual but not unpleasant.

Good luck, I know this is stressful and scary - a continuation of the emotional roller coaster. But you do want to know what you're dealing with and hopefully these tests will show clean clean clean and then you can breathe a big sigh of relief.

By the way, Sue is BEAUTIFUL - and you both have a spirit to match.

Hugs
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
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Old 12-11-2006, 10:09 PM   #4
Chelee
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Here's something that might help. It was my hubbys idea. They come out and hand you that cup of barium with a lid & straw in it. I tried getting it down using the straw but you taste every bit of it that way.

My husband said to take the lid off the cup & gulp it down. In other words...get it over with. (Don't think about it.) Ha! Guess what...that worked. It is so much easier that way. Thats the only way I do it now. (Not sure it will help Sue, but thats my suggestion.) I hope it helps.

Wishing Sue good luck tomorrow. You both hang in there.

Chelee
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Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-11-2006, 10:27 PM   #5
StephN
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Wink Can't chug

Personally, I have to take it slower or I GAG! I get the Berry flavored one and that is better then the old banana flavor.

It is good to have a little water as you can have clear liquids before. Then afterwards I do the Cranberry juice and lots of water to make myself go to the potty and get rid of the stuff. It will take a day or so to eliminate the chalky barium stuff, but keep the fluids coming to help that or it can be a bit constipating.

It is also good to try to get the contrast out of your system as well with a good dose of liquids after.

Crissy alluded to the "hot seat" phenom that you get with the contrast. Sue will feel it go all through her body and then she will feel like she may have wet her pants. That is NOT the case, just feels like it. That passes very quickly like a couple of minutes.

Welcome to the Barium Club! Hopefully this will be the only time she ever has to do this.
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Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-12-2006, 06:56 AM   #6
Sheila
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I may have missed something here but I usually don't drink contrast before the CT....not to say I have never had it, but the physician can order without...last time there was an error and the XT Dept. gave me 3 delicious glasses of their version of a martini called Johnny Go Lightly....well it worked, but not lightly.....I must have been in the bathroom 30 times, and had to go through a bone scan, brain Mri etc. after the CT scan...I was in the right lane looking for exits on the 75 mile ride home....not pleasant at all...so now I don't do the drinkable contrast, just the IV contrast...which gives you that rosy feeling, like an instant hotflash...and as Steph said, you feel like you wet your pants...just all the dye accumulating in the lower abdominal area....I usually have all my scans done in 1 day due to distance....feel like I glow in the dark after!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 12-12-2006, 07:52 AM   #7
Mary Anne in TX
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I'm a super cold, drink it with a straw girl! I do drink it pretty fast. The most important thing that I have found is to "Psych" myself before I reach in the frig for the stuff. "I'm a pretty lucky girl to have the opportunity to get this CT done today. They let me stretch out on a cozy bed and give me great things to drink:! Works for me! They make me drink 1 bottle 2 hours before the appt. and 1 bottle 1 hour before the appt. (that one gets chugged on the way) and then the little cup just before table time!

Since I've had a life time of kidney problems, I drink like a fish for the rest of the day and the next! I down a bottle or two of cranberry juice just for good measure. I like to get all three CT, bone, and muga at once, but it doesn't always work out that way!

As everyone said, it's really not bad. Good luck on all your results! I do remember being new to all this and being panicked over each step. Nothing has helped more than hearing from everyone on this site on how to "get it done"!
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Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-12-2006, 07:53 AM   #8
Heart Sutra
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Hi all.....

This is the first time I get to reply and I must first say thank you for all the help you have given us!!!!!

As far as the barium, I didn't think it was going to be a great experience but that's really not where my head is at this morning.

No one could ever take away this absolute thrill I'm feeling.

I GET TO TAKE A SHOWER!! THE FIRST IN A WEEK!!! Yeah!!!

Anyway, I do thank you...Without this site we would be in a nut house!!!

Thanks, Sue
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Old 12-12-2006, 10:50 PM   #9
Jean
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Sue and Kevin,

Wishing you good luck tomorrow!

Jean
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