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Kelly,
I have constant pain from my Herceptin treatments. Two weeks ago I complained to my oncologist about pain in my left left -- not the same pain as I normally have. It was a different pain. She sent me for an Xray fo the hip, upper leg and knee. Everything looked fine. The pain has subsided now but I still wonder in the back of my mind if it isn't a warning sign of something. Had my Herceptin treatment today, blood work and got the results of my CA27-29 which was 13.1. My HER2 serum blood test wasn't back yet. I'm sure it's nothing to worry about but I would definitely have it checked out. I'm due to have my PET/CT scan in January as I get them every 3 months right now. My scan in October was fine.
I think the most difficult part of having cancer is the worry of recurrence or mets. As much as we want to just get on with life we alwyas have that little voice in the back of our minds reminding us that we have cancer. I surely would like to learn not to listen to it. Goood luck to you and keep us posted.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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