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Old 11-29-2006, 11:03 AM   #1
Joe
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Carolm
There are many on this board who have survived brain mets. Please go to our Brain Metsathesis page: http://www.her2support.org/a/newher2_002.htm
for tons of information.

Please read the paper which we published last June for the ASCO meetings. Click on the box on the lower right hand side of the page. I would suggest printing the page and give a copy to your oncologist.

Actually, Gamma Knife is the preferred treatment, followed by whole brain radiation..surgery is only used as a last resort if the tumor is too large.

Warmest Regards
Joe
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Old 11-29-2006, 03:21 PM   #2
Heart Sutra
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hello

Carol,
We don't know enough to give you any advice, I'm sure there are many here who can.
We wanted to wish you good things, and our thoughts are with you right now.
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Old 11-29-2006, 07:50 PM   #3
heblaj01
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Carol,
Follow the indications given above by Joe for your main concern, the brain mets.
Regarding bone mets, if Pamidronate stops helping you, do not forget that Zometa is likely to be still effective (& perhaps more effective) as demonstrated in this study:
http://www.ncbi.nlm.nih.gov/entrez/...l=pubmed_docsum

If you do switch to Zometa at some time in the future, I suggest you request the infusion time to be extended from 15 to 30 minutes to reduce further the small risk of kidney problems which are slightly more frequent when Zometa is given after Pamidronate
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