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Old 11-27-2006, 09:17 AM   #1
mkrny
Senior Member
 
Join Date: Mar 2006
Location: LI, NY
Posts: 38
Here's his contact info:

Dr Alexis Demopoulos
Director, Neuro-Oncology
North Shore/LIJ - North Shore University Hospital
300 Community Dr
Manhasset, NY 11030
516.562.3065

Our prayers are with you,
__________________
Maryann & Ken
__________________
Stage IV, Her2/Neu 3+++, Er & Pr positive,
Primary mets to brain/CSF, bones & lymphs
DX: 2/01, DCIS Rt one, Neoadjuvant chemo, MRM 7/01
Rads to chest, neck, lower spine, pelvis
WBR & cyberknife
Numerous chemo/hormonal cocktails along the way
10/11/06: Started Trial of Lapatinib/Xeloda, after 2 cycles it is declared a failure for us.
11/24/06: Now starting rads to upper spine then IT herceptin
12/07: Took a turn for the worse and entered hospice. Enjoyed remaining time with family and friends feasting on cookies and sushi.
4/11/07: Peacefully passed on. Maryann will be missed by all.
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Old 11-27-2006, 12:02 PM   #2
aviv
Member
 
Join Date: Nov 2006
Posts: 8
thanks! already contacted him and he referred me to someone in the area. i'll keep you posted if there's any progress on the IT Herceptin area with us.
__________________
Mom is BC Stage IV, Her2/Neu 3+++, Er+/Pr+,
Age 61, DX 5/2000, Adriamicin+CMF 1 year, Femara 5 years
12/2004: Mets to liver, Herceptin+Xeloda
5/2006: Progression to bones, brain - Navelbine, WBR, then Gemzar
11/2006: CT shows 8 big brain mets.
Trying to get on Lapatinib. Considering IT Herceptin...
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