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From what I see any work w/ IT herceptin is pre-trial. Very experimental at this point w/ unknown end results from a statistical perspective (4 patients isn't enough for oncs to hang their hat on performance).
We have a neuro-onc on Long Island in NY (Dr Demopoulos) that is giving it to one patient currently and my Maryann is likely to be his second patient on it. I can provide contact info if desired.
Is radio surgery (e.g. Gamma-knife, Cyberknife, ...) an option to attack the multiple brain met spots you mom has?
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Maryann & Ken
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Stage IV, Her2/Neu 3+++, Er & Pr positive,
Primary mets to brain/CSF, bones & lymphs
DX: 2/01, DCIS Rt one, Neoadjuvant chemo, MRM 7/01
Rads to chest, neck, lower spine, pelvis
WBR & cyberknife
Numerous chemo/hormonal cocktails along the way
10/11/06: Started Trial of Lapatinib/Xeloda, after 2 cycles it is declared a failure for us.
11/24/06: Now starting rads to upper spine then IT herceptin
12/07: Took a turn for the worse and entered hospice. Enjoyed remaining time with family and friends feasting on cookies and sushi.
4/11/07: Peacefully passed on. Maryann will be missed by all.
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