HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-19-2006, 05:59 AM   #1
Kimberly Lewis
Senior Member
 
Kimberly Lewis's Avatar
 
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
and further..

I love my family and my life but once this disease is beyond reasonable treatment I will go happily to a Father who loves me, without fear or doubt that I will be turned away. It is that simple faith that sustains me and holds me through my darker moods, and helps me to know that suffering is a part of life that teaches us things we would never know in the superficial plane we normally exist in. I appreciate the prayers I receive and believe that they do me good. I am having the most positive attitude that I can - but closing my eyes and folding my hands is not the only thing I can do. The apostle Paul said - let him who will not work - not eat as well... (2Thess. 3:10) we are expected as far as I understand it - to work. Positive results from positive action - mixed with faith and hope and Love. This is the scripture in a nutshell to me right now.
__________________
Kim

Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


Kimberly Lewis is offline   Reply With Quote
Old 11-19-2006, 06:32 AM   #2
VirginiaGirl
Senior Member
 
Join Date: Oct 2006
Location: Fredericksburg, VA
Posts: 93
Dear Kim, Your reply was right on the nose! I'm sorry you had to deal with that. After my initial diagnosis I was asked if I was ready to meet my maker, it stunned me, though I know there was no malicious intent there. I also know that I'm more inclined lately to over-react to things because my head is not where everyone else's is a lot of the time. So, consider the person's intent, and don't let it get you down! Information is power.

If there's anything that cancer has taught me it is the truth of the expression "God helps those who help themselves." I quickly realized that God would take care of me according to his plan, but he wasn't going to pick up the phone and argue with the insurance company - that part was my job. It is overwhelming the amount of time it takes to research all the info, just reading all the info in these forums can be overwhelming! Thank God, too, there are those of you out there who are able to sort through it and share it with the rest of us! If this disease finally does get me, I want to be able to tell myself and my family that I did do absolutely everything I could, at least the second time around!
Peace
__________________
Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin

VirginiaGirl is offline   Reply With Quote
Old 11-19-2006, 08:24 AM   #3
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
God bless you Kimberly. You have said many things that hit the nail on the head, over and over again. I have tears in my eyes over it. Your quote from Paul was excellent. I had forgotten about it and Paul in general (who is the most realistic apostle). I will have to read him. He is very "get up and get out there".


Many of my friends also say " its gone and you're cured". Well, we all sure hope so and "statistically" many of us are but you have to live it to understand and and today, I sure do understand everything you have said.

Take care dear friend and have a wonderful Thanksgiving.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 11-19-2006, 10:37 AM   #4
CLTann
Senior Member
 
Join Date: Oct 2005
Posts: 476
You are right on the bull's eye in correcting others' remark about putting yourself in His hand. If there is even a trace of validity of relying only on one's faith, there is no need for medical profession at all. It is too simplistic to say that God will take care of everything. Snap back at those who made these remarks, asking whether they ever needed any medication at all. I knew some sect of religious fanatic refuses to accept any medical treatment. I watch the woman died so unnecessarily from an illness easily curable by modern medicine. The world is full of lunatics whom we should carefully stay away.

Ann
__________________
Ann

Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
CLTann is offline   Reply With Quote
Old 11-19-2006, 10:49 AM   #5
karenann
Senior Member
 
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
God bless you Kimberly. I think your reply is perfect.

My experience has been that people who have not walked in our shoes don't understand. A lot of people in my life think now that my treatment is over, I should just go forward and I am, with caution. When they ask how I am doing, I say fine, because that is what they want to hear.

I am still involved with several of the women from my support group and they always want to hear how I am doing. We share our fears and talk about the aches and pains we have. Somehow, eventhough we don't see each other as often as we would like, this connection really helps.

I would recommend this type of group to any cancer survivor.

I hope you and all of the women on this board have a peaceful and happy Thanksgiving.

Hugs,

Karen
karenann is offline   Reply With Quote
Old 11-19-2006, 12:01 PM   #6
Cathy1
Senior Member
 
Join Date: Nov 2005
Posts: 43
Hi Kimberly

"Work as if everything depended on you and pray as if everything depended on God." Never mind what anyone says. You only have to answer to the one Just Judge and He loves you as if you were the only one. God Bless, Cathy1
Cathy1 is offline   Reply With Quote
Old 11-19-2006, 01:23 PM   #7
Sandy H
Senior Member
 
Sandy H's Avatar
 
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
You are so right in saying they don't understand because they have not walked in our shoes. After almost 6 years of being in and out of treatment I am still asked when I am going back to work! They tell me I look great. They don't understand the chemo brain, fatique, sleepless nights, all the appointments we sat around for, the phone calls to straighten out the errors of billing, trying to eat healthy and not on the run, drink lots of fluids causing us to go to the bathroom more frequently and on and on it goes. Enough said, Kim you said it well, keep the faith and keep moving on. You have God's leading and will do well. Have a blessed, happy Thanksgiving. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
Sandy H is offline   Reply With Quote
Old 11-19-2006, 07:15 PM   #8
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
Hope things look better tomorrow. I haven't had the lack of faith reply but the good attitude reply. I do have a good attitude but I don't think that my Her-2 proteins really care or are affected by my attitude.

I think the oncs expect us to be happy because statistically our chances are somewhat small to get brain mets, although 3X higher than other BC I think, still small. It's less likely for you to have brain mets than not. Of course most of us had tiny odds of getting BC in the first place. So the oncs do have the right perspective which is easier to have when you don't have BC.

Do the counselling. If it doesn't help maybe the meds will. I think some psych problems are chemically based and counselling your seratonin uptake won't work.

All of us have these kind of days. You will have really good days again. Bev
Bev is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 10:02 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter