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10-15-2006, 08:05 AM
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#1
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Donate to HER2 Support
Hello Her2 friends;
In honor of Breast Cancer Awareness Month, I'd like to suggest, on behalf of HER2 Support, that we remember to donate to this site, which is run and maintained entirely by volunteer effort and supported financially through grants and donations.
October is Breast Cancer Awareness Month, let's not forget HER2 Support Group!
Donations
http://www.her2support.org/donation.html
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10-16-2006, 12:33 PM
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#2
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Senior Member
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
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I would like to donate
Hi,
I would like to donate but the link took me to an outdated version of PayPal - let me know the "donate to" details so I can send the $$.
Thanks!
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10-16-2006, 08:35 PM
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#3
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Hi Donna, not sure why the PayPal site is outdated, that's Joe's area of expertise, however as an alternative you can...
mail your tax-exempt donations to:
HER2 Support Group Org.
6973 Mimosa Drive
Carlsbad, CA 92009-5156
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10-17-2006, 09:19 AM
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#4
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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The paypal site works for me...or maybe its fixed. Great idea Lolly...Christine and Joe and the whole Her2 Support group have truly made the most profound impact on me dealing with this disease....there is no way to say thank you enough.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-15-2006, 08:36 AM
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#5
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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bump up
Greetings Friends of HER 2
Just wanted to bump this up. The anniversary of the HER2 support board is December 24. They will be 5 years old and the "BEST" thing I have ever found for support..... THE BEST !!
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11-15-2006, 10:24 AM
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#6
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Can't think of a better Christmas gift to give myself and others!
Please let us know how!
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-15-2006, 10:18 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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for those of us who are working, ( I am not), inquire to matching gifts from employers
MCS ( maria)
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11-16-2006, 12:24 AM
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#8
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Mary Anne, try the link in my first post, it should take you to the donations page.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-17-2006, 02:14 AM
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#9
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Thanks for the reminder Lolly. I'm sending in my check tomorrow!
Joe and Christine are THE BEST!
Kim in CA
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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11-17-2006, 11:08 AM
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#10
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Senior Member
Join Date: Jun 2006
Location: Oklahoma
Posts: 39
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Check's in the mail
Thanks Lolly for the reminder. I am so thankful for this site.
__________________
Ora
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DX 7-5-05, Age 54, Stage 1, Grade 2, ER+ (25%) PR- Her2 neu 3+
Lumpectomy 8-4-05, 2cm tumor, 3 nodes neg, Completed 4 A/C, 4 taxol, decadron (weekly due to steriod reaction) finished 4-17-06
Finished 33 rads 6-5-06, Femara, Started Herceptin 6-22-06
Effexor for hot flashes, Taken off Herceptin Feb 2007 due to low LVEF (44 by Echo) Coreg & Lisinopril replaced bp meds - April Echo back up to 55 Resumed Herceptin 5-21-07.
2010: almost 5 YRS NED!!! Still taking Femara & Coreg. Due to all the CT scans, abdominal aneurysm found & repaired. Something good came out of having cancer.
2013 7+ years NED. Still on Femara
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11-17-2006, 06:21 PM
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#11
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Senior Member
Join Date: Sep 2005
Posts: 312
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Thanks for the reminder. I hope to be donating to them for many years to come, that is, until we get the CURE!
Janet
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