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11-01-2006, 02:30 PM
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#1
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Blisters now raw sores following rads
I just completed 7 weeks of radiation and the last 7 days were a booster dose directly localized on my tumor site. I still have the "X marks the spot" and the burned circular area from this booster dose. I also have 3 open sores within this circular area where the booster rads were given. They were blisters first. Has anyone else had this booster dose for 7 days and the blisters/sores? Should I be concerned? Seeing onc tomorrow at my herceptin tx thank goodness.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-01-2006, 04:47 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I had 6 boosters and I had open sores (from the blisters bursting) all over the place. Even under my arm and where the bra band is underneath the breast. My radiation onc gave me a prescription for Silvadene ointment but the Binefine cream and aloe vera gel (100%) actually worked better for me.
At least the rads are over and everything will really start to heal now.
Kind regards
Becky
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11-01-2006, 04:56 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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2nd the motion !
The Binefine cream and the 100% aloe worked wonders. Just find the Wal Mart or Target brand that is 100%. They usually put that on the lowest shelf ....makes it more difficult to fine the cheap stuff !!
Hugs, Bonnie
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11-02-2006, 07:39 AM
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#4
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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thanks becky and newgg for the recommendations. is binefine over the counter?
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-02-2006, 08:15 AM
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#5
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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I reacted to aloe vera and the binefine didn't work all that well for me, so my rad onc told me to try desitin cream. It cleared me up right away.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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11-02-2006, 08:29 AM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I had the same problem with radiation treatments. I was using pure aloe vera from treatment number one and still got burned to a crisp. Guess the radiation worked. My radiation oncologist prescribed an antibiotic cream in order to prevent an infection -- used it a couple days and then went back to aloe vera. On my last visit he was pleased that you couldn't tell which side of my chest had been radiated.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-02-2006, 09:48 AM
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#7
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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No Rx
Do not remember getting a script for the Binefine but did have to ask the pharmacy for it. If I remember ....it was a few bucks. Just find the combination of lotions that works for you and apply in ample amounts. Did not get dressed with out first appling the lotions. Went through a big bottle of aloe. If you do think anything is getting infected see the doc for an antibiotic cream.
Hugs, Bonnie
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11-02-2006, 11:20 AM
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#8
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I had open sores too after radiation. I used the cream nurses gave me -- can't remember name. (can't remember a lot of things) I also added neosporin. Cleared up well except for one big round scar I have near the nipple that I hope will fade eventually. I wore a bra one day when I thought sores were healing. Big mistake. The bra rubbed them raw and I had blood on my clothes. Don't wear a bra. MJO
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11-02-2006, 12:01 PM
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#9
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Wow! Guess I am not the only one with this problem. Thank you everyone for all your good suggestions. The only thing the radiation therapist gave me was Aquafor which is really mild...kind of like petroleum jelly. So far I haven't had a problem with wearing a bra.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-02-2006, 08:49 PM
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#10
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hi Rinaina, Biafine was prescription but may be OTC now. $25 per tube. My insurance doesn't cover dermatological creams. Looked liked petro jelly. I don't remember what the active ingredients were, but not aloe. They really stressed putting it on 3x a day right from the start. I would put it on right after rads in the dressing room, after showers and before bed. Also asked us to wear all cotton bras. The only place I had open skin was the thin line at the crease below my breast. I followed up with aloe creams and everything is back to normal. Hope you heal quickly. BB
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11-02-2006, 11:43 PM
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#11
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Hi Rinaina;
Aquafor is great stuff, don't let it's "mild" appearance fool you...I just finished 38 rads to right axilla, and used aquafor throughout. Would put it on before dressing, after treatment, then 3 or 4 times through the day, whenever I could feel the area getting "tight". I never blistered, just got very red. I didn't wear a bra as I felt the friction would cause problems.
<3 Lolly
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11-03-2006, 10:32 AM
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#12
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Thanks Bev and Lolly for your input. Using the Aquafor liberally and often now and looking forward to these sores healing. Rads are done as of last Thursday so on with Herceptin as I have been getting it, every 3 weeks. My treatment yesterday wiped me out. I got so tired that I fell asleep at 8:00 last night and missed Grey Anatomy...can you imagine that!!!!
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-03-2006, 10:41 AM
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#13
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Hi,
I also had those "boosts" to my mastectomy scar. The creams the other folks mentioned are good. I also found that lightweight white cotton t-shirts were good to wear under my clothes during radiation and for weeks after while I was still healing.
Warmest regards,
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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11-03-2006, 10:51 AM
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#14
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Thanks Karen for your input as well. I really don't have any problems with wearing anything I want. I guess the location of my sores is such that it doesn't get irritated by my bras or clothing thankfully, but I am using the aquafor to hopefully help the healing along.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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11-03-2006, 02:59 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Rinaina
Haven't been able to post latley but wanted to help if could. I have completed 5 weeks rads to chest area for open skin mets. One week was booster. it was a horrible red , painful mess for about 2 weeks after and then started to heal. I used solugel which is a clear gel( maybe an Australian term) and covered it with cling wrap so it didn't lift off new skin. I still have a few patches healing but the rest is better. good luck.
love
Linda
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11-03-2006, 07:36 PM
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#16
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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thanks lindaw for the tip. looking forward to healing and good to hear it happens with everyone.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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