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Old 10-23-2006, 05:12 PM   #1
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Lindyjo,

My oncologist does not believe in tumor marker tests -- too unreliable. If you are on Herceptin the best test you can have is the Bayer Serum HER2 test. There is a thread on the board here dealing with the Serum Test if you do a search you will find it. A good rule of thumb is if you have any symptom that lasts for 2 weeks it is best to get it checked out. Whether that means an MRI, CT, bone scan or a PET/CT scan.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-23-2006, 09:46 PM   #2
sadie
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Join Date: Jan 2006
Location: Michigan
Posts: 98
My onc feels the same way....and I'm glad.
I just had my annual physical which included mammogram & breast mri and muga scan and ct scan. I had the cat scan of my abdomen & pelvic area due to trace of blood in urine.
When I had the mammogram, they called me back in right after the mamm so they could do a magnified view. They said it was to compare with a previous magnified view. (yeah, right...was my 1st thought)
The wait for results on all of these tests was agonizing. All of those old feelings/memories came back. The scan results did show a small 7mm spot on my liver, but my onc said not to worry because of all of the false-positives. She truly does not believe it would be cancer of the liver.
But, she said she will now have to do another scan in 3 months to see if the spot is still there,shrunk or whatever. Now, I'm nervous about that!
By the way, no more blood in urine after taking antibiotics. Probably just a bladder infection according to my dr. All other tests came back negative for cancer.
I hate all of the anticipation.
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Dx Oct 2005 IDC
Lumpectomy
1cm / Stage 1 / grade 3
Sentinel node neg
Her2+++
ER+ / PR weakly+
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