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10-09-2006, 10:47 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Lisa, you're right - it is a day like no other. I can still relive every moment of that day for me - and it was 21 years ago. It is never easy, but what a blessing you were all together enjoying each others company the evening before. Much love and prayers to you and your family.
chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-09-2006, 11:00 AM
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#2
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Hi Lisa,
I am very sorry to hear that you lost your father. Your will continue to be in my prayers. I lost my father on August 6, 2006 to late stage Alzheimer's. It is a treacherous disease. Again, I will keep you and your family in my prayers. Brighter days have got to be ahead for you.
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10-09-2006, 11:08 AM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Hi Lisa,
I am sorry for the loss of your Dad. I am happy that you were with him the night before his passing and that he was happy. That is a blessing! You are a sweet daughter. I will say a prayer for you and your family.
Hugs and Prayers,
Lexi
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10-09-2006, 11:19 AM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Love & Light back to you
Dear Lisa -
Life is sweet and sour. All those prayers for you and your intuition was probably about YOUR DAD instead. Close enough, I would say. Your feelings of foreboding actually WERE spot on. Just the person was not clear.
Nothing to feel bad about - his symptoms do not seem bad enough to call a doc or take him to the hospital, better he was left at home.
Your mother will have to refocus her life and this is going to be difficult as she was so devoted to your Dad. Very good that she is close by. Will remember you both in my prayers.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-09-2006, 12:51 PM
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#5
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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please accept my heartfelt sympathies, so very sorry for your loss. no matter what age a parent is, it is a terrible loss.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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10-09-2006, 01:10 PM
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#6
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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LISA, I'M SO SORRY FOR YOUR LOSS. JUST REMEMBER YOUR FATHER WOULD WON'T YOU TO STAY STRONG & LIVE LIFE. I TAKE CARE OF MY FATHER WHO JUST TURNED 89. JUST A FEW WEEKS AGO THE DOCTOR WANTED TO PUT HIM IN THE HOSPITAL AND PUT A FEEDING TUBE IN HIM. I TOLD MY SISTER TO JUST BRING HIM HOME AND I WOULD TRY TO MAKE HIM COMFORTABLE. EVERYDAY I WAKE UP I THINK THIS MIGHT BE MY LAST DAY WITH HIM. I KNOW IT WILL BE HARD TO LOSE HIM BUT I KNOW ITS PART OF LIFE AND I WILL REMEMBER HIM AND HOW MUCH HE LOVED ME. I HOPE YOU CAN FIND COMFORT IN YOUR MEMORIES. I KNOW YOU HAVE BEEN THRU A LOT, PLEASE TAKE CARE.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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10-09-2006, 02:35 PM
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#7
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Senior Member
Join Date: Mar 2006
Posts: 39
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thoughts with you
My prayers and thoughts are with you at this very difficult time. I lost my father to early onset Alzeheimer's two years ago. I am just so glad you got to have this last special night with him and he was happy. susan
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10-09-2006, 02:43 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Lisa;
I am so sorry to hear of your dad's passing. My prayers to you and your family.
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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10-09-2006, 07:36 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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I'm so sorry, Lisa. Praying for God's strength and comfort for you and your family during this very difficult time.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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10-10-2006, 06:57 AM
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#10
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I've heard that in Jewish tradition (and maybe other traditions) to die in your sleep is to be "kissed by God." My 80 year old mom fussed over my dad all their life together. She misses him (he died in 2002), but she enjoys many things about her life. Please take good care of yourself. MJO
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10-10-2006, 02:12 PM
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#11
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Senior Member
Join Date: Oct 2005
Location: TN
Posts: 84
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Prayers for you & your family
__________________
3/2003-Dx'd Stage 4 Her 2+++
"Life is not measured by the number of breaths we take, but by the moments that take our breath away."
Dum spiro spero (Latin: while I breathe I hope)
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10-10-2006, 09:30 PM
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#12
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Member
Join Date: Sep 2006
Posts: 12
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Lisa,
I am so sorry to hear of your Dad's passing. You must feel like a part of you is missing now. I lost my Dad in 1988. I must say there is not a day that goes by that I don't think of him. Things will happen to remind me of him so frequently - silly little things. I know it is him just saying hello to me and telling me everything will be ok. I hope your Dad will watch over you in the same way.
My prayers are with you.
EllaD
__________________
DX 9/6/05
Lumpectomy 9/28/05
Wider margins 10/10/05
Right Mastectomy 10/17/05
Stage IIb,4/5 positive nodes
HER2+3 positive
ER- PR+
3.7 cm tumor
CX/Adrimiacin 4 over 8wks
Taxol/herceptin for 8 wks
Radiation 30 treatments
Currently on herceptin - every 3 wks.
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10-13-2006, 06:42 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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I'm so sorry for your loss Lisa. I lost mine in July of this year. Yes, it will be difficult on you and your family for a while. My mother who was married to dad for 54 years and was his caregiver is very lost yet.
However, it looks as if he had no pain in passing away so that should be of confort and the fact that he lived to an old age.
My sympathy to yours.
MCS ( maria)
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