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		|  10-05-2006, 07:15 PM | #1 |  
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				Join Date: Feb 2005 Location: Norridgewock, Maine 
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				Lost another sister!
			 
 I just found out tonight my friend passed away from IBC.  She fought the battle for two years.  I met her through a support group and then we became best of friends.  I had the pleasure of supporting her through her struggle with this disease.  It was hard for me at times because the treatments did not work for her but worked great for me.  What do you say to a person you are supporting except keep trying different ones.  Her first grandchild was born shortly after she passed.  She was the sweetest, most positive person I have ever met.  I hope she is in a better place as she suffered so much for so long.  Her Mom is 85 years old and it has left her very angry.  Sandy 
				__________________Dx. 03/01, Rt. IBC
 AC/Taxatere
 Rt. MRM-with graft Lt. simple
 5 rads-skin mets
 Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
 Navelbine & xeloda (did not work)
 topical miltex for skin mets
 Tykerb/xeloda
 thoracentesis x 2 left lung fluid shows cancer cells
 Port removal (4 years) with power port replacement
 Doxil
 Updated 05-07 Scans show no bone or organ involvement we shall see!
 
 
 
 
 I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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		|  10-05-2006, 07:17 PM | #2 |  
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				Join Date: Dec 2005 Location: Walnut Creek, CA 
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	 | I'm so sorry for your loss, Sandy.  You are both in my prayers.
 Hugs,
 
 Karen
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		|  10-05-2006, 07:30 PM | #3 |  
	| Senior Member 
				 
				Join Date: Sep 2005 Location: Ontario, Canada 
					Posts: 752
				 
		 
		 
		
		 
		
		
	
		
	
	 | Sandy;
 I am so sorry for your loss.  It is absolutely awful the wonderful people this dreadful disease takes...the families it leaves behind.....and so quickly....that is so scarey to me personally.  Sandy, god bless.  Take care and I will be praying for you and your friend.....and all of us....
 
 Cathy
 
				__________________Cathy
 
 Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
 Diagnosed Jan. 2005 tumor in supraclavicular node
 Stage 3c, Grade 3, ER/PR+, Her2++
 4 AC, 4 Taxol, Radiation, Arimidex, Actonel
 Herceptin for 9 months until Muga dropped and heart enlarged
 Restarting herceptin weekly after 4 months off
 Stopped herceptin after four weekly treatments....score dropped to 41
 Finished 6 years Arimidex
 May 2015 diagnosed with ovarian cancer
 Stage 1C
 started 6 treatments of carboplatin/taxol
 Genetic testing show BRCA1 VUS
 Nice! My hair came back really curly. Hope it lasts lol.  Well it didn't but I liked it so I'm now a perm lady
 29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
 April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
 Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
 To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
 Genetic testing of ovarian tumour and this new lung met will take months.
 To see geneticist to be retested for BRCA this week....still BRCA VUS
 CA125 has declined from 359 to 12 as of Aug.23/18
 
 
 
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		|  10-05-2006, 08:35 PM | #4 |  
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				Join Date: Dec 2005 Location: Alexandria, VA 
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	 | I'm sorry Sandy. BB |  
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		|  10-05-2006, 08:40 PM | #5 |  
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				Join Date: Jan 2006 Location: Victoria, Australia 
					Posts: 95
				 
		 
		 
		
		 
		
		
	
		
	
	 | Hi Sandy
 I am sorry to hear this disease has taken another beautiful soul.  I find losing friends I make at the chemo ward one of the hardest parts of treatment.  I do not cope with it very well at all.
 
 Our chemo ward lost a beautiful young woman last week.  She was in her 20's with 2 children under 5, and she really kept to herself.  I had tried to engage her conversation a few times, but it was obvious she did not want to talk to anyone.  My heart just went out to her.  I was shattered to hear that she had passed away.
 
 So, I share your pain, and wonder how we learn to deal with these losses.
 
 Take care.
 
 Love Lisa
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		|  10-06-2006, 03:10 AM | #6 |  
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				Join Date: Sep 2005 Location: . 
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	 | Dear Sandy
 Its so hard to loose people when we survive. i often think about this. What I do know is that your support would have been invaluable to your friend as it has been to us ( and me).Know that we are thinking of you.
 
 love
 lindaw
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		|  10-06-2006, 05:50 AM | #7 |  
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				Join Date: Sep 2005 
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	 | Sandy,
 I'm sure your friend needed and appreciated your help.  I'm so sorry her battle ended so soon.
 
 Love and light,
 
 Lisa
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		|  10-06-2006, 08:39 AM | #8 |  
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				Join Date: Nov 2005 Location: Northern Calif. 
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	 | Sandy,
 I am sorry for the loss of your dear friend. This disease is so aggresive.
 
 I bet you were a dear friend and such a comfort to her as she went through her txs. My prayers are with her family.
 
 Hugs and Prayers,
 Lexi
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		|  10-06-2006, 02:10 PM | #9 |  
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				Join Date: May 2006 Location: northshore suburb of chicago 
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	 | So sorry for the loss of your friend.  Knowing how you are, I am sure she found great comfort in your friendship and support.  May she rest in peace. 
				__________________~Rina~
 Dx:3/06 had a lumpectomy April 19, 2006
 Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
 AC 4 dense doses
 34 radiation treatments including booster doses
 receiving herceptin every 3 weeks since late August 2006 for 12 months
 
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		|  10-06-2006, 02:18 PM | #10 |  
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				Join Date: Sep 2005 Location: Central Coast, CA 
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	 | Sandy,I'm sorry to hear of the loss of your friend.  There are just too few answers.
 Much love
 Chris
 
				__________________Chris in Scotts Valley
 June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
 9/2004  Diag: Stage IV extensive  liver mets (!) ER/PR- Her2+++
 10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
 04/05 - 4/07 Herception every 3 wks, Continue NED
 04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
 06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
 01/08 Progression in liver
 02/08 Begin (TDM1) trial
 08/08 NED! It's Working!  Continue on TDM1
 02/09 Continue NED
 02/10  Continue NED.  5/10 9/10 Scans NED 10/10 Scans NED
 12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
 07/11 - 11/11 Herceptin/Xeloda -not working:(
 12/11 Begin MM302 Phase I trial - bust:(
 03/12 3rd times the charm? AKT trial
 5/12 Scan shows reduction!  7/12 More reduction!!!!
 8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
 9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
 11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
 11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
 2/13 Gemzar/Carbo/Herceptin - no go.
 3/13 TACE procedure
 
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		|  10-06-2006, 05:45 PM | #11 |  
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				Join Date: Sep 2005 Location: Coatbridge, Scotland 
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				Hi Sandy
			 
 I am sorry for your sad loss. A friend is someone very special but I think your friendship was extra special because of your circumstances. Here is a poem I was given when my dear mum passed away on xmas day last year. I hope it helps you and your friends family.....It helped me !     It's called..
 "YOU WOULDN'T UNDERSTAND"
 
 To my dearest family, some things I'd like to say, but first of all to let you know that I arrived ok.I'm writing this from Heaven where I dwell with God above, Where there's no more tears or sadness, only eternal love..
 
 Please, do not be unhappy, just because I'm out of sight. Remember that I'm with you, every morning, noon and night...
 
 That day I had to leave you, when my life on earth was through, God picked me up and hugged me and said I welcome you, Its good to have you back again, you were missed while you were gone and as for your dearest family, they'll be here, later on. I need you here so badly, as part of my big plan. There's so much that we have to do, to help our mortal man..
 
 Then God gave me a list of things, he wished for me to do and foremost on that list of mine, is to watch and care for you..So I will be beside you, every day, week and year and when you're sad, i'm standing there, to wipe away the tear and when you lie in bed at night, the days chores put to flight, God and I are closer to you, In the middle of the night..
 
 When you think of my life on Earth and all those living years, because your only human, they are bound to bring you tears. But do not be afraid to cry, it does relieve the pain, Remember there would be no flowers, unless there was some rain..
 
 I wish that I could tell you, of all that God has planned, but If I were to tell you, You wouldn't understand , but one thing is for certain, though my life on earth is over, I am closer to you now, than I ever was before..
 
 And to my many friends, trust God knows what is best, I'm still not far away from you, I'm just beyond the crest. There are rocky roads ahead of you and many hills to climb, but together we can do it, taking one day at a time..
 
 It was allways my philosophy and I would like it for you too, that as you give unto the world, so the world will give to you. If you can help somebody, who's in sorrow or in pain, then you can say to God at night, my day was not in vain..
 
 And now I am contented, that my life, it was worthwhile, knowing as I passed along the way, I made somebody smile. So if you meet somebody who is down and feeling low, just lend a hand to pick him up, as on your way you go..
 
 When you're walking down the street and you've got me on your mind, I'm walking in your footsteps, only half a step behind. And when you feel that gentle breeze, or the wind upon your face, that's me giving you a great big hug or just a soft embrace..
 
 And when it's time for you to go, from that body, to be free, remember you're not going, you're coming here to me. And I will allways love you, from that land way up above, will be in touch again soon....
 
 P.S.  God sends HIS LOVE  x
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		|  10-06-2006, 06:12 PM | #12 |  
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				Join Date: Dec 2005 
					Posts: 274
				 
		 
		 
		
		 
		
		
	
		
	
	 | Sandy,
 I am so sorry for your loss.  My thoughts and prayers are with you.
 
 With Love,
 
 Liz J.
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		|  10-07-2006, 01:51 AM | #13 |  
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				Join Date: Sep 2005 Location: france 
					Posts: 1,648
				 
		 
		 
		
		 
		
		
	
		
	
	 | Dear Sandy,I'm sorry to hear of your loss.  I am sure your friendship meant a lot to your friend.
 Stay strong and healthy
 hugs
 sarah
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		|  10-07-2006, 01:46 PM | #14 |  
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				Join Date: May 2006 Location: northshore suburb of chicago 
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	 | What a lovely poem Geraldine...thanks for sharing it with all of us 
				__________________~Rina~
 Dx:3/06 had a lumpectomy April 19, 2006
 Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
 AC 4 dense doses
 34 radiation treatments including booster doses
 receiving herceptin every 3 weeks since late August 2006 for 12 months
 
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		|  10-08-2006, 12:19 PM | #15 |  
	| Senior Member 
				 
				Join Date: Sep 2005 Location: Los Angeles 
					Posts: 430
				 
		 
		 
		
		 
		
		
	
		
	
	 | I'm so sorry for your and our loss, Sandy.  Anyone lost to bc, it's our loss also.
 
 I'm glad there was you for her.
 
 MCS ( maria)
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		|  10-08-2006, 12:20 PM | #16 |  
	| Senior Member 
				 
				Join Date: Sep 2006 Location: Houston, Texas 
					Posts: 624
				 
		 
		 
		
		 
		
		
	
		
	
	 | I am sorry to hear of the loss of another sister.  My prayers are with you. |  
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		|  10-08-2006, 05:44 PM | #17 |  
	| Senior Member 
				 
				Join Date: Feb 2006 Location: Acworth, GA 
					Posts: 2,104
				 
		 
		 
		
		 
		
		
	
		
	
	 | Sandy, 
 I'm sorry to hear abut the loss of your friend.  It's always hard when you loose someone especially when you both have been battling the same disease.  There are no answers.  You just have to have faith.
 
				__________________Kate
 Stage IIIC Diagnosed Oct 25, 2005 (age 58)
 ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
 Neoadjunct chemo: 4 A/C; 4 Taxatore
 Bilateral mastectomy June 8, 2006
 14 of 26 nodes positive
 Herceptin June 22, 2006 - April 20, 2007
 Radiation (X35) July 24-September 11, 2006
 BRCA1/BRCA2 negative
 Stage IV lung mets July 13, 2007 - TCH
 Single brain met - August 6, 2007 -CyberKnife
 Oct 2007 - clear brain MRI and lung mets shrinking.
 March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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		|  10-10-2006, 04:57 AM | #18 |  
	| Senior Member 
				 
				Join Date: Feb 2005 Location: LI, NY 
					Posts: 660
				 
		 
		 
		
		 
		
		
	
		
	
	 | Sandy - I am so sorry for your loss.  It is especially hard for me to read because of the IBC.  I do know how you feel about the survivors guilt, but I am sure NO ONE would fault you for living!!  It is hard to understand why some of us do better than others.  I have been hit hard with the worst diagnosis/prognosis three times, but I am still here...yet my friend Holly lost her battle to BC last October with a "milder" diagnosis.  There is no rhyme or reason to this stinking disease.  Please do something fun the two of you may have talked about and never gotten around to doing and NEVER give up...¸.·´ .·´¨¨)) -:¦:-
 ((¸¸.·´ ¸.·´ -:¦:- -:¦:-
 -:¦:- ((¸¸.Maryann -:¦:-´´
 
				__________________Maryann
 Stage IV Inflammatory BC 1/00
 Mod Rad Mastectomy 24nod/5+
 Adriomycin Cytoxin Taxol
 Tamoxifen 4 1/2 yrs
 Radiation - 32 x
 Metastatic BC lung/liver 10/04
 thorocentesis 2x - pleurodesis
 Herceptin Taxatiere Carbo
 Femera/Lupron
 BC NED 4/05
 chemo induced Acute Myeloid Leukemia 5/06
 Induction/consolidation chemo
 bone marrow transplant - 11/3/06
 Severe Host vs Graft Disease of liver
 BC mets to lung 11/07
 Fasoladex Herceptin Zometa Xeloda
 GVHD/Iron overload to liver
 Avascular Necrosis/morphine pump 10/10
 metastatic brain tumor
 steriotactic radiosurgery
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		|  10-13-2006, 02:36 AM | #19 |  
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				Join Date: Sep 2006 Location: Oklahoma 
					Posts: 9
				 
		 
		 
		
		 
		
		
	
		
	
	 | Sandy,
 
 ((((HUGS)))) I'm so sorry for you loss of your wonderful friend. Hopefully all the wonderful good memories will help you through this. I lost a dear friend this year to leukemia who left behind a 6yr old son. It's an extremely tough to deal with.
 
				__________________Sher
 
 So Far:
 Lump found 08/06 right breast.
 DX 09/08 Invasive Lobular Carcinoma RB, Stage IV.
 9/25 First Surgery - Complete Mascetomy w/expander and port placed.
 ER/PR/HER2-, 15/20+
 Major tissue damage.
 METS to skin, liver, brain, sternum, lymph nodes.
 10/3 Second Surgery - fat donated from lower ab and skin grafts from pubic area to chest
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