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Old 10-02-2006, 05:11 PM   #1
CLTann
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Join Date: Oct 2005
Posts: 476
We are all devastated in facing the unseen time bomb. It is almost like our facing the unseen terrorists, not knowing when and where they will strike. Many of our doctors' offices do not seem to help in consoling our feeling: slow and vague reporting.

It is our decision to face our lives with courage and determination. Do all we can to fight the disease, help each other in information and support. Live a happy life, don't let the disease or the imaginary disease be our master.

Take all nutrition aids and do the exercise so that your body can fight with its own immune power. Seek spiritual and mental help if you need support. I love you all and God bless all of us.

Ann
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Old 10-02-2006, 05:38 PM   #2
micheleu
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Join Date: Sep 2006
Location: Nebraska
Posts: 154
Marejo,

meet the most "worried" patient my onc. has seen he said!! I had 34 pos nodes and now i'm 3 years out! The scariest was getting off Herceptin. I begged my onc for more. He said NO. Now i'm glad he did. I felt a kid in a candy store getting shut off from candy. To make you feel better, my onc told me they have not had ANYONE recur in 5 years on the Herceptin trial. I had to ask several nurses to believe it. I don't know why they had 100% not recur. The study said about 50% decrease in recurrence, but 100%, Wow. Let this be encourgaing for you. I know the first 2 years are the worst. Like Audrey my dearest friend said, It does get easier. One day you will wake up and forget to worry!
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Old 10-02-2006, 06:26 PM   #3
Mary Jo
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Location: Sheboygan, WI
Posts: 2,582
Hi Micheleu,

What an ENCOURAGING post. Thank you for that. Is that really true. NO ONE had a recurrence in those who were on herceptin. I want to NOT believe it out of fear of me being the first one - haha!

I so appreciate your encouragement. God continue to protect you from this disease.

Marejo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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