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Old 09-16-2006, 07:59 AM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Patty

Did you have any regression or stability on any of the drugs you tried? You can retry a drug or combine 2 that worked "okay" (if six months has passed since you tried a particular drug). Secondarily, has your onco applied for compassiate use of Tykerb (see Joe's posts). FORCE his hand to do so and get the ball rolling.

In the meantime, go back to a combo of 2 of the drugs that kinda worked for you (you can post here which ones did and some of us can let you know if they can be used together). Of course combine with Herceptin - it may seem like it is failing you but it might boost up whatever chemo you end up on. Also - try to insist on trying Avastin to the mix. This might just do the trick for you while waiting for Tykerb. Are you hormone positive? If so, it might be the time to try something different - like Faslodex instead of Tamoxifen or an AI.

There's a mix out there for you to keep you stable for the time being. Try to relax and take a deep breath. We are here for you and will help you dig out of this hole (which isn't as deep as you think).

Big hug to you

Becky
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