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Old 09-08-2006, 01:37 PM   #1
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Sandy;

I am so glad you are keeping us informed of your treatments. You are so right....if it's not one thing it's another.....lol. What a bummer....lol. I really shouldn't kid as I know this isn't funny. I hope you enjoy a quiet weekend and this passes....good grief...Sandy that was NOT intentional! Perhaps it's not either drug just a slight flu? Keep well....glad to hear that it's working on your skin mets.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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Old 09-08-2006, 04:44 PM   #2
Sandy H
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Location: Norridgewock, Maine
Posts: 778
Thanks Cathy but I am sure its not the flu as it started with in a couple of days after starting this treatment as mild and just getting worse. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 09-08-2006, 04:52 PM   #3
lindaw
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Posts: 211
Dear Sandy


I was so pleased and excited to hear about your great reaction to the tykerb for your skin mets. i am sorry the diarrhea has been so severe - I really hope they can keep that under control.

love
lindaw
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