***What was your date of dx, stage, treatment and current status...???***

Becky · 09-01-2006, 06:46 PM

Dear Janet

You are having state of the art pathology and are beginning the next age of the future with getting Top IIA tested in order to pick chemo regimes. Three cheers for you. Keep us posted on how the report turns out and hence, your treatment plan.

Have a nice weekend

Becky

patti · 09-01-2006, 08:29 PM

Dx 9/03 Stage III grade 3 ER/PR+, Her2neu+++, 3 cm tumor. Lumpectomy w/axillary disection 7 out of 11 nodes+. Did dose dense AC/Taxol, followed by radiation. Started on arimadex, but I couldn't stand how I felt on it, so I was switched to tamoxifen in 5/04. Mets to spine at L1 which caused a fracture. Treated w/radiation and started on zometa and Herceptin weekly for 3 months and have been every 3 wks herceptin and 6 wks zometa. I am thinking of coming off the Herceptin by the end of the year and just watch closely by doing frequent scans. Any thoughts on that? By the way, those who have been doing the vaccine trial in Washington, has anyone noticed increase appetite/weight gain? I have gained several pounds since starting this trial.

tousled1 · 09-01-2006, 09:58 PM

Colleen, I sincerely hope that your PET scan shows that it's only scar tissue.

Johnnag85 · 09-03-2006, 07:32 PM

Age 38 at DX,
Felt lump 6-05, had mamm and was DX 6-13-06 with invasive ductal carcinoma. Had lumpectomy 6-21-06. Found 1- 1cm lump, and 4 smaller lumps, 6 of 13 nodes positive. Her2+++, stage 3a. Started chemo 7-05 4 cycles AC, followed by Taxol, 1x per wk for 12 wks, started Herceptin also, 1x per week. Had MUGA at beginning, heart strength was at 76%. 1/2/06 Had 2nd lumpectomy to check status of invasive cancer, only insitu cancer found with clear margins at original lump site. (Med Onc wanted me to get a mastectomy, surg. Onc. wanted me to do radiation and monitor breast) I opted for radiation. Did 7 wks of radiation on right breast. 5-06 began to have dizzy spells, shortness of breath, extreme fatigue. MUGA found my heart had weakened to 46% over the 6 months from the Herceptin. Stopped Herceptin immediately. Had ab and chest CT , found a dozen nodules on both lungs. Had PET scan, inconclusive...of course

Johnna

Mary Jo · 09-04-2006, 04:25 AM

Wow Johanna - I'm so sorry. At one of our visits to our oncologists, our nurse (the one who takes all of our phone calls etc.) gave my husband a button to wear on his work jacket that says "cancer sucks!" How true is that.

Keep trying to find the joy while we walk this earth. There is lots to be found - even when it is hard to find.

God Bless

marejo

Johnnag85 · 09-04-2006, 10:06 AM

Marejo-

Thank You, I apreciate that. It does suck, but it also puts life into perspective, doesnt it? Its too bad it takes something like that to make you see it.
Johnna

gin-tx · 10-10-2006, 04:59 PM

I was sent a private e mail requesting info about port, Herceptin, etc. It erased when my computer froze. If you see this please respond and I'll try to give you some info. I did not even get the person's name or e mail address.

ginkott1@aol.com

bobbiw · 10-13-2006, 02:43 PM

Diagnosed 10-18-05.
Lump was found on annual mamogram.
Left Mastectomy 10-27-05. No node involvement. Tumor was 2 cm. Margins were clear. Tumor was IDC grade 3 of 3. Estrogen and Progesterone positive, HER2/neu positive 3+.
Port placed 12-1-05.
Began chemo 12-6-05. 4 cycles of AC (every three weeks).
Feb 10th 2006 began Taxol and Herceptin weekly.
Last Taxol was May 25th 2006.
Will continue weekly Herceptin until Feb or March.
Began reconstructive surgery in June as well as prophylatic mastectomy of right side at that time. Had my last expander fill September 25th. Will hopefully have exchange surgery in May.
And yeahhhhh I am soon at my one year mark!
Bobbi