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Old 10-24-2005, 08:14 AM   #1
Rozebud
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Bone mets question (tailbone pain??)

What do bone mets feel like? I've been having sharp pain on and off for the last 3 days in my tailbone. It's not constant, on and off. I'm trying not to worry as I know it's only been 3 days, but is this a place that you can actually met to? I had a clean PET in August.

TIA! Rose
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Rose

Dx'd 1/04 at 33, while 33 weeks pregnant

Dx: Stage IIIC IDC, ER-, PR+ (23%), Her2=2.7 (IDC)/7.6 (FSH), 2.5cm primary tumor, grade III, 11/18+ nodes (largest 3.8 cm)

Treatment: A/C *4, T *4, 1 year of herceptin (BCIRG 006), mastectomy, rads (7 weeks), zoladex (5 years) with tamoxifen (2 years)/aromisin (3 years), bilateral SGAP summer 05 at NOLA

Oops, retested tumor and I guess I'm er/pr- after all.
Stopped all hormonal tx 10/07. Periods resumed 6/08. Bye bye hot flashes!!!!

http://www.edrie.com/kopecky
*~VISIT OUR FAMILY!~*
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Old 10-25-2005, 10:39 AM   #2
Lolly
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Rose, I don't have any experience with bone mets pain except what others who have it have told me: they usually say it's fairly constant. Also, sometimes pressure to the specific area brings on the pain. I guess you'll have to ask your oncologist for a scan to make sure. Keep us posted, ok? <3, Lolly
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Old 10-25-2005, 01:33 PM   #3
jener8er
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Hi Rose! I have had tailbone pain for months and was completely freaked out about it. I had an x-ray, a bone scan and finally an MRI and they all came back normal. Go figure. It does still hurt, particularly if I sit leaning back for any extended amount of time. For what it's worth, my onc didtell me it would be highly unusual for mets to appear in the tailbone. I would think if you had a clean PET, you are fine, but use the usual guidelines for all of us and if it still hurts in 2 weeks, mention it to your Dr. I still don't know what mine is, but as long as it's not cancer, I'll live with it!
Take Care
Jen
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Old 10-25-2005, 04:21 PM   #4
Maryanne
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Hi Rose,

I tooooooo have had tail bone pain, mri of spine negative, went to an orthopedic surgeon, and he told me this was a fairly common complaint in women with desk jobs.....or any one sitting around alot...It was mearly an irrritation to the tailbone from lack of proper exercise. I tried a donut type pillow and upped the miles as recommended and with in 2 weeks the pain was gone
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Old 10-25-2005, 04:35 PM   #5
Rozebud
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Thank you guys SO much - I knew I could count on you.

For now, I'm trying not to worry. I called the oncologist yesterday afternoon and her nurse talked to me for a while and doesn't think it's bone mets, because (a) it subsided when I took advil (which I took for my nipple tatoos I got yesterday!) b) it is sharp and comes and goes, and c) she'd never heard of anyone in 20 years with bone mets to the butt.

I guess I'm not as worried but I still question every ache and pain that sticks around for more than 48 hours. I hope this is just nothing. You ladies are all so incredible, thank you for your answers and support
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Rose

Dx'd 1/04 at 33, while 33 weeks pregnant

Dx: Stage IIIC IDC, ER-, PR+ (23%), Her2=2.7 (IDC)/7.6 (FSH), 2.5cm primary tumor, grade III, 11/18+ nodes (largest 3.8 cm)

Treatment: A/C *4, T *4, 1 year of herceptin (BCIRG 006), mastectomy, rads (7 weeks), zoladex (5 years) with tamoxifen (2 years)/aromisin (3 years), bilateral SGAP summer 05 at NOLA

Oops, retested tumor and I guess I'm er/pr- after all.
Stopped all hormonal tx 10/07. Periods resumed 6/08. Bye bye hot flashes!!!!

http://www.edrie.com/kopecky
*~VISIT OUR FAMILY!~*

Last edited by Rozebud; 10-25-2005 at 09:07 PM..
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Old 10-27-2005, 02:59 PM   #6
Becky
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Rose


Since your pain comes and goes, it is probably nothing. Bone pain from cancer is constant (or a constant ache) and doesn't even go away with tylenol or a similar otc pain killer.

I'm rooting for you.

Best wishes

Becky
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