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Old 09-18-2011, 11:25 AM   #12
yankeebikachic
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Join Date: Jul 2008
Location: Durham NC
Posts: 73
Re: ? about Tykerb Duration

Ha ha well still no reply from my onc so I think I'm going to start taking 3 pills with food/protein/fat whatever. I had been taking 5 pills with no food before or after, did that for 3 yrs. Fingers crossed I can do well with 3 pills and some protein (milk in my am coffee), I will get scanned in 2 months so we'll see! But so far, so good, no bad feeling after taking the 3.
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4/06 Found small lump, biopsy + at 34 yrs.
5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+
6/06 port placed. 4 Ad/Cyt and 4 Tax.
11/06 bilateral mastectomy
12/06 begin Rads
1/07 Finished Rad-started H, weekly for one year.
1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way.
7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav.
Doctor refused to give me HER2 meds.
8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized!
12/08 NED continue Ty/X
3/09, 6/09, 9/09, 11/09, all scans show NED
Dropping X, continue Tykerb
As of 6/10, 3/11 still negative, continuing Tykerb...
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