Hi Julie, I've never had Tykerb but when I was doing "TCH" I lost 35 lbs. In fact in one wks time I lost 10 lbs & the nurse practioner was very concerned about it. I just smiled at her and told her to try TCH and get back to me. 
There are other woman that have done TCH and it did NOT have that affect on them...they actually gained weight. So as you know our bodies respond differently to these drugs. If I remember right its Tykerb that most the women that have taken it have mentioned diarrhea. So between that and eating differently while on it would explain your weight loss. Try not to worry about that even though that's easier said then done.
I am sending you warm positive thoughts for good news on your scans. (Keeping you in my prayers too!)
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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